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The Pulmonary Fibrosis Foundation has assembled a list of medical centers that have specific expertise in the treatment of pulmonary fibrosis (PF). This compilation is based on the Foundation's experience in working with leading medical centers around the United States to fund research and improve patient care.

The list below is not in alphabetical order. To quickly find resources in your state, please use the search feature.

For more assistance please contact the PFF Patient Communication Center at 844.TalkPFF (844.825.5733) or 
pcc@pulmonaryfibrosis.org.

Contact information on this page is solely intended for patients, caregivers and family members who are looking to connect to a support group. Contact information should not be used for business purposes at this time. Please email pcc@pulmonaryfibrosis.org with any further questions.

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Support Groups

The Mary P. Kennedy Support Group for Patients with Pulmonary Fibrosis

University of Alabama at Birmingham
Interstitial Lung Disease Program
The Kirklin Clinic at UAB
Pulmonary Clinic (4th Floor)
2000 6th Avenue South
Birmingham, AL 35233

Group meets: Quarterly
Please contact Amy Patillo or Tonja Meadows for meeting dates and times.

Contact: Amy Patillo
(205) 975 6770

Tonja Meadows, RN
(205) 934 7630


View Website
IPF Support Group of Montgomery

Center for Wellbeing
4371 Narrow Lane Rd, Ste 200
Montgomery AL 36116

Group meets: Contact Dr. Fuentes for meeting dates and times.

Time: 12:00 p.m. – 2:00 p.m.

For more information, please contact Janet Mann, Group Coordinator, at 334- 731-3275 or jemann73tu@hotmail.com. Additional inquiries can be sent to Lakeyla Jones, Group Assistant, at 334-747-7732 or ltjones@baptistfirst.org.


View Website
Banner University Medical Center PF Support Group

Banner University Medical Institutes
Classroom 1
755 E. McDowell Road
Phoenix, AZ 85006

Group meets: Second Friday of every month
Time:  11:00 a.m.-12:00 p.m.

Deanna Kalina, RN, BSN, CCTC
602.521.3400
Deanna.Kalina@bannerhealth.com

*Please note that this group will be on hold until January 2018

 


View Website
Support Group for Idiopathic Pulmonary Fibrosis, Pulmonary Fibrosis, and Lung Disease

Lana Hilling, RCP, MAACVPR
Manager, Lung Health Services
John Muir Health
2720 Grant St.
Bldg. 1, Ste3 3
Concor, CA. 94520

Group Meets: Last Wednesday of every month

Contact: Lana Hilling
925.674.2351
Lan.hilling@johnmuirhealth.com

Contact: Gloria Stambaugh
Gloria.stambaugh@johnmuirhealth.com

View Website
Inland Empire Pulmonary Fibrosis Support Group

Fontana Kaiser Permanente
Building #3, 4th Floor
Blue North Room
9961 Sierra Avenue
Fontana, CA 92335

Group meets: Third Thursday of every month (except July, August, and December)
Time: 4:00 p.m.

Contact: Magdalena Pacheco
909.730.5650
M4unont@aol.com


View Website
UCLA Interstitial Lung Disease Support Group

UCLA 200 Medical Plaza
Conference Room 347, 3rd Floor
Los Angeles, CA 90095

Group meets: Third Tuesday of every month
Time: 1:00 p.m. to 2:30 p.m.

Contact: Eileen Callahan, CCRP, ILDC Research Coordinator
310.794.2466
ecallahan@mednet.ucla.edu


View Website
One Breath Foundation, Transplant and Pulmonary Fibrosis Support Group

Norwalk Social Service Center
11929 Alondra Boulevard
Norwalk, CA 90650

Group meets: Third Sunday of every month from 12:00-2:30pm. 

Contact: Gloria Rodriguez
562.447.4785
Glorry2god@aol.com


View Website
Pulmonary Fibrosis Support Group

Renker Wellness Center at Eisenhower Medical Center
39000 Bob Hope Drive
Rancho Mirage, CA 92270

Group meets: Second Tuesday of every month
Time: 12:00 p.m. to 1:00 p.m.

Contacts: Debra Fuller, RN
760.773.2031
dfuller@emc.org

Jenny Armstrong
jarmstrong@emc.org


View Website
Central Valley Pulmonary Fibrosis Support Group

Sutter Cancer Center
2800 L Street
Sacramento, CA 95816

Group meets: Second Monday of January, March, May, July, September, and November.
Second Tuesday of February, April, June, August, October, and December.

Contact: Maya Juarez
916.734.3643
mmjuarez@ucdavis.edu


View Website
Living Well with ILD

University of California, San Francisco
400 Parnassus Avenue
San Francisco, CA 94143

Group meets: Second Tuesday of every month. Classroom location for each meeting will be emailed a week in advance.
Time: 1:00 p.m. to 3:00 p.m.

Contact: Sally McLaughlin, RN, MSN
415.353.2577
sally.mclaughlin@ucsfmedctr.org


View Website
Pulmonary Fibrosis Support Group

Stanford University Medical Center
Center for Advanced Lung Disease
300 Pasteur Drive Li Ka Shing Building
Stanford, CA 94305

Group meets: Every other month on a Monday
Time: 12:00 p.m.
Please call Susan Jacobs to confirm date and time as they are subject to change.

Contact: Susan Jacobs, RN, MS
650.725.8083
ssjpulm@stanford.edu


View Website
Joe Walsh Memorial Pulmonary Fibrosis Support Group

National Jewish Health
1400 Jackson Street
Molly Blank Room J105
Denver, CO 80206

Group meets: Second Tuesday of every month
Time: 1:00 p.m. - 2:30 p.m.

Contact: Mark McCormick, Support Group Leader
303.249.9901
mccormickm1@comcast.net

Carol Bair, Clinical Coordinator ILD Program
303.398.1912
bairc@njhealth.org


View Website
Mile High Pulmonary Fibrosis Support Group

Exempla Lutheran Medical Center
9830 I-70 Frontage Road South
Wheat Ridge, CO 80033

Group meets: Last Tuesday of every month, except December and January
Time: 2:00 p.m. to 3:30 p.m.

Contact: Brenda Crowe, Lung Health Educator
303.467.4133
croweb@exempla.org


View Website
Pulmonary Fibrosis Support Group

Yale West Campus
800 West Campus Drive/Conference Center
Event Room B
Orange, Connecticut 06477

Group meets: Please contact Kristin Papu to RSVP and for meeting dates and times.

Contact: Kristin Papu
203.737.7041
Kristin.papu@yale.edu


View Website
SW Florida Pulmonary Fibrosis Support Group

Lee Memorial Hospital Physician Office Building
2780 Cleveland Avenue
7th Floor, Room 705
Fort Myers, FL 33901
(reception area of respiratory rehab office)

Group meets: Second Wednesday of every month
Time: 1:00 p.m.

Contact: Lynne Puglise, Coordinator
941.875.5732
lapuglise@gmail.com


View Website
Pulmonary Fibrosis Support Group

South Miami Hospital Pulmonary Rehabilitation Center
First Floor Conference Room
6250 Sunset Drive
South Miami, FL 33143

Group meets: Quarterly

Time: 11:00 a.m. to 12:00 p.m.

Please contact Caridad Gonzales for meeting dates and times
Contact: Caridad Gonzalez, RRT
786.662.8484
caridadg@baptisthealth.net


View Website
Naples Pulmonary Fibrosis Support Group

North Naples Hospital Campus Cafeteria
11190 Healthpark Boulevard
Naples, FL 34110

Group meets: First Friday of every month
Time: 1:30 p.m.

Contact: Richard Sampson
239.353.6564
This group is for pulmonary fibrosis patients, caregivers, and families.


View Website
Naples Lung Transplant Support Group

North Naples Hospital Campus
Pulmonary Rehab Center
11190 Healthpark Boulevard
Naples, FL 34110

Group meets: Second Wednesday of every month
Time: 4:00 p.m.

Contact: Richard Sampson
239.353.6564
This group is for lung transplant recipients and their families.


View Website
Tallahassee Pulmonary Fibrosis Support Group

LeRoy Collins Library
Henderson Room, 2nd Floor
200 West Park Avenue
Tallahassee, FL 32301

Group meets: Please contact Donna Templeton for meeting dates and times.

Contact: Donna Templeton, RMA
850.570.8045
lsugurl27@yahoo.com


View Website
Pulmonary Fibrosis Support Group

Piedmont Hospital
1968 Peachtree Road
Building 77, 6th Floor
Atlanta, GA 30309

Group meets: Fourth Tuesday of every other month
Time: 12:30 p.m.

Contacts: Marcy Solmson
marcysolmson@att.net
770.337.1773

Piedmont Atlanta Hospital Pulmonary Rehabilitation
404.605.2294


View Website
Georgia Lung Associates Support Group

Office Education Room
3820 Medical Park Drive
Austell, GA 30106

Group meets: Third Tuesday of every month
Time: 11:00 a.m.

Contact: Amy Case, MD
NWAtlPF@gmail.com


View Website
Idaho Pulmonary Fibrosis Support Group

St. Luke's Hearth Health and Rehabilitation
3525 East Louise Drive, Suite 500
Meridian, ID 83642

Group meets: Fourth Wednesday of every month
Time: 11:00 a.m.

Contacts:
Laura Gilmore
208.880.4503
lgilmore@cableone.net

Debbie Herndon
208.891.1336
Debbhern@gmail.com


View Website
Eastern Idaho Pulmonary Fibrosis Support Group

Mountain View Hospital
Classroom A
2325 Coronado St
Idaho Falls, ID 83404

Please contact Kate Gates at kgates@pulmonaryfibrosis.org or the PFF Patient Communication Center at 844.TalkPFF (844.825.5733) for more information about this support group.
View Website
Breakfast Club Support Group

Elmhurst Memorial Hospital
155 East Brush Hill Road
Maple Room
Elmhurst, IL 60128

Group meets: Last Saturday of every month
Time: 10:00 a.m.-12:00 p.m.

Contacts: Michele Peters, Group Leader
630.417.4395
TeamJeffery4PF@gmail.com


View Website
Pulmonary Fibrosis Support Group

Edward Hospital
801 S Washington Street
Naperville, IL 60540

Group meets: First Thursday of every month. Contact Donna Serlin for more information and directions.
Time: 10:00 a.m. to 11:30 a.m.

Contact: Donna Serlin, BS, RRT
630.527.3388


View Website
Pulmonary Fibrosis Support Group

Deaconess Hospital
Room 1420
600 Mary Street
Evansville, IN 47747

Group meets: Fourth Tuesday of every month
Time: 3:00 p.m.

Contact: Amy Kirsch, Lead RRT/Education Coordinator
812.450.2448
amy.kirsch@deaconess.com


View Website
St. Vincent Evansville Pulmonary Fibrosis Support Group

Center for Advanced Medicine
Pulmonary Rehab Department
Cardiac Conference Room, 2nd Floor
3700 Washington Avenue
Evansville, IN 47750

Group meets: Meets quarterly on the 1st Wednesday of the quarter
Time: 12:00 p.m. to 1:00 p.m.

Contacts:
Jackie Lannan, RN, BSN
812.485.5230
jnlannan@stmarys.org

Please call to confirm meeting date and time.


View Website
Living with IPF Support Group

Parkview Health System
Wooten Room, Enter through door #2
11115 Parkview Plaza Drive
Fort Wayne, IN 46845

Group meets: Second Saturday of every month
Time: 10:00 a.m. to 11:30 a.m.

Contacts:
Bill 260.570.3988
Dianne 260.452.9308
This group is for pulmonary fibrosis patients, their families, and friends.


View Website
University of Louisville Pulmonary Fibrosis Support Group

University of Louisville Outpatient Clinic
401 East Chestnut Street
Louisville, KY, 40202
Conference Room 120

Group meets: Contact Belica Graf Tamra Perez for more meeting dates.
Time: 1:00 p.m.-3:00 p.m.

Contact: Belica (Be) Graf, RRT, Clinical Research Coordinator
502.852.8036
belica.graf@louisville.edu

Tamra Perez, Program Manager for Clinical Research
502.852.1358
tamra.perez@louisville.edu


View Website
Better Breathers Club Support Group

WMHS Pulmonary Rehabilitation Program
Western Maryland Regional Medical Center
Auditorium #5 on 2nd Floor
12500 Willowbrook Road
Cumberland, Maryland 21502

Group meets: First Monday of every other month
Time: 5:00 p.m.

Contact: Stacey Blank, RRT, Program Coordinator
240.964.3807
sblank@wmhs.com
This group is for those with chronic lung disease and also includes pulmonary fibrosis patients and families.


View Website
IPF Support Group of the Berkshires

Berkshire Medical Center
Dining Room B: adjacent to the cafeteria
725 North Street
Pittsfield, MA 01201

Group meets: Fourth Thursday of every month
Time: 4:00 p.m. to 6:00 p.m.

Contact: John Dominguez, Support Group Facilitator
413.684.5015
daltoncc@nycap.rr.com

Martha Dominguez, Assistant Facilitator
mabaglady@nycap.rr.com
View Website
Better Breathers Club Support Group

Jordan Hospital
Funkhouser Conference Room
275 Sandwich St
Plymouth, MA 02360

Group meets: Second Wednesday of every other month
Time: 1:00 p.m. to 2:30 p.m.

Contact: Peg Lougee, RRT, CPFT
1.800.2JORDAN

This group is for those with chronic lung disease and also includes pulmonary fibrosis patients and families.


View Website
Ann Arbor IPF Support Group
The Quest for Breath/University of Michigan IPF Support Group

University of Michigan Pulmonary Rehabilitation
325 East Eisenhower Parkway, Suite 14
Burlington Office Center
Ann Arbor, MI 48103

Group meets: First Tuesday of every month
Time: 2:00 p.m. to 4:00 p.m.

Contact: Lori Flint
lzaremba@med.umich.edu
734.763.7668, Option 5


View Website
Pulmonary Fibrosis Support Group

New Life Presbyterian Church
11300 Nineteen Mile Road
Sterling Heights, MI 48314

Group meets: Second Tuesday of every month
Time: 2:00 p.m. to 4:00 p.m.

Contact: Gary Cunningham
248.649.4959
ghcunningham@comcast.net


View Website
Pulmonary Fibrosis Support Group of Minnesota

Bethlehem Baptist Church
720 13th Avenue South
Minneapolis, MN 55415

Group meets: Second Tuesday of every month
Time: 6:30 p.m. to 8:30 p.m.

David Naumann
612.382.9856
dnaumann@umn.edu
PFSGMN@gmail.com


View Website
Greater Kansas City Pulmonary Fibrosis Support Group

Saint Joseph Medical Center
1000 Carondelet Drive (I-435 and State Line Road)
Kansas City, MO 64114

Group meets: Second Tuesday of every month
Time: 4:30 p.m.

Contact: Eugenia Sullivan-Moley, SC
816.943.2040
emoley@carondelet.com

Dawnie Ellison, CRT
dellison@carondelet.com


View Website
The Lung Research Center PF Support Group

St. Luke's Hospital
The Lung Research Center
222 S. Woods Mill Road Suite 300 N.
Chesterfield, MO 63017

Group meets: Quarterly
Please contact Kate McNulty for meeting dates and times.

Contact: Kate McNulty, MHS, CCRC
314.682.3630
Kathleen.mcnulty@stlukes-stl.com


View Website
Garden State Pulmonary Fibrosis Support Group

Morristown Memorial Hospital
100 Madison Avenue
Morristown, NJ

Group meets: Last Wednesday of every month
Time: 7:00 p.m.

Contact: Barbara Murphy, Support Group Leader
(908) 276-3394
bjmurphy21@verizon.net


View Website
Pulmonary Fibrosis New Mexico Support Group

Pulmonary Fibrosis New Mexico Support Group
American Lung Association Office
5911 Jefferson St. NE
Albuquerque, NM 87109

Group Meets: 2nd Wednesday of the month at 12 pm.
Contact: Karen Smoot
505.265.0732


View Website
NYP ILD Patient and Family Support Group

New York-Presbyterian Hospital-Columbia Campus
Price Family Center for Chest Care
161 Fort Washington Avenue
Herbert Irving Pavilion, 3rd Floor
Conference Room
New York, New York 10032

Group meets: Third Wednesday of each month

Time: 3:00 p.m. - 4:30 p.m.

Contact: Julie Porcelli BSN, RN, CNL
212.305.8203
jap9104@nyp.org


View Website
Pulmonary Fibrosis Support Group

Phelps Memorial Hospital Center
701 North Broadway
Sleepy Hollow, NY 10591
(pulmonary lab at the auditorium entrance of the main hospital)

Group meets: Please contact Susan DiFabio for meeting dates and times.

Contact: Susan DiFabio, RRT/CPFT
914.366.3712
sdifabio@pmhc.us


View Website
UCMC ILD Clinic’s ILD Patient Support Group

Medical Arts Building, 4th Floor
222 Piedmont Ave, Ste 4000
Cincinnati, OH 45219

Group meets: Quarterly
Contact Geneva Meyers about support group meeting dates and times.

Contact: Geneva Meyers, RN
513.475.8523, option #3
513.558.3106
meyersgk@ucmail.uc.edu


View Website
Cleveland Clinic Independence Family Health Center Support Group

Meeting Room A
5001 Rockside Road
Independence, OH 44131

 

Group meets: 
December 19, 2017, Holiday party
March 8, 2018
 June 14, 2018
September 13, 2018
December 13, 2018

Time: 6:00 p.m. – 8:00 p.m. 

Contact: Karen VanKerkhove or Jessica Glennie at 216.445.4538
View Website
Portland Pulmonary Fibrosis Support Group

Legacy Good Samaritan Hospital
1040 NW 22nd Avenue
Building 2, 2nd Floor Conference Room
Portland, OR 97210

Group meets: Third Saturday of every month (Starting in 2018)


Time: 1:00 p.m. - 3:00 p.m.



2018 Schedule

January 20
February 17 
March 17 
April 21
May 19
June 16
July 21 
August 18
September 15
October 20
November 17
December 15

Terri Jo Christenson, Facilitator
503.807.4054
tjchristenson@gmail.com


View Website
Spirited Breathers Support Group

Oregon Heart and Vascular Institute
Conference Room 12C
3311 River Bend Drive
Springfield, OR 97477

Group meets: Second Thursday of every month
Time: 3:00 p.m. to 4:30 p.m.

Contact: Susan Pfanner
541.222.7442
888.240.6484
spfanner@ohvi.org


View Website
Lung Transplant Support Group

Legacy Meridian Park Hospital
Community Health Educational Building
Room 104
19300 SW 65th Avenue
Tualatin, OR 97062

Group meets: Third Wednesday of every month
Time: 2:00 p.m. to 4:00 p.m.

Contact: Michael Henderson
503.936.8395
mhenderson@pulmonaryfibrosis.org


View Website
Hershey’s IPF Support Group

Penn State Hershey Medical Center
University Fitness and Conference Center
Room 302A
Hershey, PA 17033

Group meets: Last Monday of every month. Meeting dates change occasionally. Please contact Anne Dimmock to confirm date and time of the next meeting.
Time: 5:30 p.m. to 7:30 p.m.

Contact: Anne Dimmock, PA-IPF Coordinator
717.531.5519
adimmock@hmc.psu.edu


View Website
Temple IPF Support Group – Philadelphia Campus

Temple Lung Center
3401 North Broad Street
5 Ambulatory Care Center
Zone D, 5th Floor Conference Room
Philadelphia, PA 19140

Group meets quarterly on Tuesdays starting September 19, 2017
Time 2:00 pm-3.30 pm

Contact: Michelle Vega-Olivo
215.707.5864
michelle.vega@tuhs.temple.edu


View Website
Simmons Center IPF Support Group

UPMC Presbyterian Hospital
3459 Fifth Avenue
Pittsburgh, PA 15213
Room location varies

Group meets: View Schedule
Time: 1:00 p.m. to 3:00 p.m.

Contact: Kathleen O. Lindell, PhD, RN, Clinical Nurse Specialist
412.624.7225
lindellko@upmc.edu

Terri Heinrich, Administrative Assistant, Simmons Center
412.624.7225
simmonsILD@upmc.edu
Please visit our website for up-to-date information on meeting dates and locations.


View Website
IPF Support Group

MUSC Ashley River Tower
25 Courtenay Drive
Charleston, SC 29425

Group meets: Contact Ashley Warden for meeting dates and times.

Contact:
Ashley Warden, CCRC
843.792.0401
jonesash@musc.edu


View Website
IPF Support Group for Patients and Families

Vanderbilt Medical Center
1301 Medical Center Drive
TVC Conference Room 2703-2704
Nashville, TN 37232

Group meets: Second Monday of every month (except December)
Time: 12:00 p.m.

Contact: Anne Turner, RN, BSN
615.343.7068
Anne.f.turner@vanderbilt.edu

Lunch will be provided. Please visit our website for more details.


View Website
Austin Texas Pulmonary Fibrosis Support Group
Please contact Jodi Fox for meeting details.

Contact: Jodi Fox, RRT
940.782.5057
jfox@seniorcarecentersltc.com



View Website
Houston Pulmonary Fibrosis Support Group

Location (odd-numbered months)

Kelsey Seybold Main Campus
2nd Floor (Follow Signs)
2727 West Holcombe Boulevard
Houston, TX 77030

Group meets: Third Saturday of every month (except December)

Time: 11:00 a.m. - 1:00 p.m. 

Please RSVP for a light lunch.

Location (even-numbered months)
Luby’s Cafeteria on 290 near W. Tidwell
13451 Northwest Freeway
Houston, TX 77040

Please RSVP for a saved seat.

Contact: Denise Breeden, PFA Office Manager
512.920.0187
DeniseB@pfassociation.org

John Orndorff, Vice President
281.348.2378

Please see website for any changes in current month’s meeting details.


View Website
San Antonio Pulmonary Fibrosis Support Group

Church Triumphant
339 West Hutching Place
San Antonio, TX 78221
(Meeting in the hall behind the church building)

Group meets: Please contact Dot Delarosa for meeting dates and times

Contact:
Dot Delarosa
210.836.4361


View Website
Intermountain Idiopathic Pulmonary Fibrosis Support Group

University of Utah
421 Wakara Way #360
Salt Lake City, UT 84108

Group meets: Please contact Lisa Weaver for meeting dates and location.
Time: 12:00 p.m.

Contact: Lisa Weaver, Clinic Manager, at lisa.weaver@hsc.utah.edu or by phone 801.587.7855.


View Website
Pulmonary Fibrosis Support Group of Greater Washington DC

Inova Fairfax Hospital
3300 Gallows Road
Physician Conference Center
Falls Church, VA 22042

Group meets: 4th Tuesday of every month
Time: 1:00 p.m. - 2:30 p.m.

Contact: Jane Harrison, LCSW
(703) 776-3203
jane.harrison@inova.org


View Website
Pulmonary Fibrosis Support Group

University of Washington Medical Center
1959 NE Pacific Street
Seattle, WA 98195

Group meets: Last Tuesday of every month
Time: 12:30 p.m. to 2:30 p.m.

Contacts:

Dave Sherry
253.951.9788
dssherry@outlook.com

Jennifer Hayes, RN, BSN
206.598.4967
jmhayes@uw.edu


View Website
Breath Matters Support Group of Virginia

CJW Medical Center
Chippenham Hospital Campus
Bosher Auditorium
7101 Jahnke Road
Richmond, VA 23225

Group meets: Second Monday of every month
Time: 1:30 p.m. - 3:00 p.m.
Free valet parking.

Contact: Breath Matters Support Group Help Line
804.937.6855


View Website
Winthrop Eager Breathers Support Group
Winthrop University Hospital Research and Academic Center
101 Mineola Blvd.
Room G-013/G-014
Garden City, NY 11501

Group meets: Please contact Dena for meeting dates and times.

Contact: Dena Sano, LPN
dsano@winthrop.org
516.663.2579

View Website
Traverse City Idiopathic Pulmonary Fibrosis Support Group
Munson Community Health Center
Community Room
550 Munson Ave
Traverse City, Michigan 49686

Group meets: Quarterly

2015 Meeting Dates
January 17, 2015 10:00 a.m. - 12:00 p.m.
April 18, 2015 10:00 a.m. - 12:00 p.m.
July 18, 2015 10:00 a.m. - 12:00 p.m.
October 17, 2015 10:00 a.m. - 12:00 p.m.

Contact: Lisa Talbot, Support Group Facilitator
608.234.0554
ldtalb@gmail.com

View Website
Pulmonary Fibrosis Support Group of NWI
Franciscan Health Crown Point
Marion Education Center (MEC) 
Suite A
1201 S Main St
Crown Point, IN 46307

1st Wednesday of odd months 6:00 pm - 7:30 pm
 
Contact: Angie Sohacki
219.252.5475
NWIpfgroup@gmail.com 
View Website
St. Joseph's Hospital Westgate Pulmonary Fibrosis Support Group

Raymond Kellis High School
Library
8990 W Orangewood Ave
Glendale, Arizona 85305
 
Group meets: Fourth Thursday of every month
Time: 7:00 p.m. - 8:00 p.m.
 
Contact:

Madeline Wollmer, RN
cprmandy@gmail.com
602.406.2021
 
Georgann Vanderjagt, RN, MSN
Georgann.vanderjagt@dignityhealth.org
 
Rebekah English, DNP
Rebekah.english@dignityhealth.org

View Website
Piedmont Triad Pulmonary Fibrosis Support Group
Greensboro, NC

Group meets: Please contact Fred Haley for meeting dates and location.

Contact: Fred Haley, Group Coordinator
336.288.3650
fhaley@att.net
 
Molly Brady, Group Coordinator
Molly.brady@conehealth.com

View Website
LaGrange Ohio Pulmonary Fibrosis Support Group
Pulmonary Fibrosis Support Group
Michelle’s Café
548 N. Center Street
LaGrange, OH 44050

Group meets: Last Monday of each month
Time: 6:00 p.m. - 7:30 p.m.

Contact: Deborah Irvan, Group Coordinator
440.315.1644
phleb2000@aol.com
View Website
University of Arizona PF Support Group

University of Arizona Medical Center
1501 North Campbell Avenue
Room 2343
Tucson, AZ 85724

Group meets: Third Friday of every month
Time: 1:00 p.m. - 2:30 p.m.

Contact: Carolyn Fike, Support Group Leader
carolfike@yahoo.com
520.338.7512

View Website
Oahu IPF Support Group
Castle Medical Center
640 Ulukahiki St
Kailua, HI 96734

Group Meets: Please contact Nicolle Mannion for meeting dates.
Time: 12:30 – 1:30 pm

Contact: Nicolle Mannion
Email: nmannion@hawaii.edu
View Website
Hampton Roads Pulmonary Fibrosis Support Group
Sentara Norfolk General Hospital
Brickhouse Classroom – Raleigh Building
600 Gresham Dr.
Norfolk, Virginia 23507

Group meets: Please contact Rick Rudell for dates and times.

Contact: Rick Rudell at rudellfl@cox.net

View Website
View Website
Breathe Easy Rochester
Meets at a member's home. Call or email for details.

Group meets: Third Thursday of every month
Time: 4:00 p.m. – 6:00 p.m.

Contact: Mary Pollock
585.242.0764
breatheasyrochester@gmail.com or mmpollock519@gmail.com
View Website
Bedford Texas Support Group
Texas Health Harris Methodist H-E-B Hospital
1600 Hospital Parkway
Conference Room F (East Room)
Bedford, Texas 76022

Group Meets: Contact Esther for meeting dates and times.

Contact: Esther Castilleja
Email: esthercastilleja@texashealth.org
View Website
University of Louisville Support Group
University of Louisville
Healthcare Outpatient Center
Conference Room 120
401 East Chestnut Street
Louisville, KY 40202

Group Meets: Contact Tamra for meeting dates and times.

Contact Tamra Perez, RN at 502.852.1358 or tamra.perez@louisville.edu for more details.
View Website
Grand Rapids Pulmonary Fibrosis Support Group

Spectrum Health Medical Group
4100 Lake Drive SE
Level, Basement Conference Room 40
Grand Rapids, Michigan 49546

Group meets: First Wednesday of every month
Time: 5:00 p.m. to 6:00 p.m.

Contact: Jen Cannestra, RN
616.267.9313


View Website
Suffolk County Pulmonary Fibrosis Support Group
Stony Brook University Medical Center
Lobby Conference Room
100 Nicolls Road
Stony Brook, NY 11794

Date:  Contact: Jacqueline Skarre or Dr. Alpa Desai

Time: 5:00 p.m. - 6:00 p.m.
 
Contact: Jacqueline Skarre or Dr. Alpa Desai

631.444.3869
ildcenter@stonybrookmedicine.edu


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Hemet Pulmonary Fibrosis Support Group
The Simpson Center
305 East Devonshire
Hemet, California 92543

Group Meets: Second Tuesday of every month

Time: 2:00 p.m. - 3:30 p.m.

Contact: Becky Johnson
951.926.7800
beki4jc@gmail.com

Carmen Silva
951.330.0890
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New Britain Pulmonary Fibrosis Support Group
Hospital for Special Care
2150 Corbin Avenue
New Britain, CT 06053
 
Group Meets: Please contact Laura for group meeting times and dates.
 
Contact:
Laura Roix
Laur718@gmail.com
860.268.0144

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Lafayette Pulmonary Fibrosis Support Group
Lafayette Public Library
6101 Johnston St.
Lafayette, LA 70503

Please contact Terilla Richard for meeting dates and times.

Terilla Richard
337.989.1690 
View Website
Pulmonary Fibrosis Support Group Wescoe Foundation for Pulmonary Fibrosis
St. Luke’s Hospital/Anderson Campus
1700 St. Luke’s Blvd (Riverside Circle)
Medical Office Building Ground Floor (follow blue arrows)
Easton, PA 18045

Group meets: Second Wednesday of every month 
Time: 2:00 p.m. - 3:30 p.m.

Contact: Jennifer Wescoe, M.Ed., NCC
Jennifer@wescoefoundationforpulmonaryfibrosis.org
484.553.6340

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Torrington Pulmonary Fibrosis Support Group
Charlotte Hungerford Hospital
780 Litchfield Street
Torrington, CT 06790

Date: Please contact Susan Murphy for dates.
Time: 3:00 p.m.

Contact: Susan Murphy, Facilitator
860.496.9381
smurphy@hungerford.org
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Metro East Pulmonary Fibrosis Support Group
Anderson Hospital
6800 IL-162
Maryville, IL 62062

Date: Last Wednesday of the month
Time: 6:30 p.m.

Contact:
Richard Norris, Support Group Leader
618.616.0420
Ltc05ran@yahoo.com
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Second Wind Foundation Breathe Easy PF Support Group
Plumbers and Pipefitters Hall
161 Londonderry Turnpike
Hooksett, NH 03032

Date: Third Wednesday of the month
Time: 1:00 p.m.

Contact:
Ron Geoffroy, Sr., Support Group Leader
603.396.9535
ron@secondwindforpf.com

View Flyer

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Advanced Lung Disease Support Group of Long Island
North Shore Long Island Jewish Health Systems
410 Lakeville Road Suite 107
New Hyde Park, NY 11040

Date: Please contact Sophy Dedopoulos for dates and times.

Contact: Sophy Dedopouslos, ANP-C
516.465.5465
sdedopou@nshs.edu
View Website
Norwalk Hospital PF Support Group

Norwalk Hospital
34 Maple Street
Norwalk, CT 06850

Please contact John Morthanos for meeting dates and times.

John Morthanos
203.378-2414
jmorth@optonline.net
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Southwest Louisiana Pulmonary Fibrosis Support Group

Beauregard Memorial Hospital
600 South Pine St.
DeRidder, LA 70634

Please contact Toni James for meeting dates and times.

Toni James
 337.396.7890
tonipfawareness2015@gmail.com


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Boston Pulmonary Fibrosis Support Group
Massachusetts General Hospital
Gray/Bigelow Building
Sweet Conference Room, Fourth Floor
Boston, MA 02114
 
Group Meets: First Thursday of each month

Time: 12:00 p.m.
 
Web conference call access is available for all meetings. Please contact Katharine Black, Kblack1@mgh.harvard.edu or Aliaa Barakat at aliaa@ildcollaborative.org for more information.
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The Easy Breathers
Seton Medical Center Hays
6001 Kyle Parkway
Kyle, TX 78640

Date: Second Wednesday of every month
Time: 10:15 a.m.

Contact: Lori Larson, RRT
LLarson@seton.org
512.504.5139

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North Puget Sound PF Support Group
Western Washington Medical Group
3rd Floor Conference Room
12728 19th Ave SE
Everett, WA 98208

Time: 12:00 p.m. - 2:00 p.m.

Group meets: Please contact Nancy Brown for group meeting dates.

Contact: Nancy Brown, RRT
nbrown@wwmedgroup.com
425.252.1116 extension 2710

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Pensacola IPF Support Group
Baptist Medical Towers
1717 N E Street
Room 100
Pensacola, FL 32501

Group meets: Please contact Margaret Bruce for meeting dates and times.

Contact: Margaret Bruce
850.982.6761
cltbee@aol.com
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Port Charlotte Pulmonary Hypertension/Pulmonary Fibrosis Support Group
Village Place Health & Rehab Center
2370  Harbor Blvd.
Port Charlotte, FL. 33952

Group meets: Second Thursday of every month.
Time: 12:00 p.m. - 2:00 p.m.

Contact: Linda Milo
941.255.5043
lindanpeter@centurylink.net

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Statcare IPF Support Group
2240 Sutherland Ave.
The Mill Room (follow the signs)
Knoxville, TN 37919

Group meets: Second Tuesday of every month
Time: 1:00 p.m. - 3:00 p.m.

Holly Byrd, APN-BC
865.588.8831
hbbyrd@summithealthcare.com
View Website
Pulmonary Fibrosis Middle Georgia Support Group
Medical Center, Navicent Health
Pulmonary Rehabilitation Department
777 Hemlock Street
Macon, GA 31201

Group meets: Quarterly

Please contact Ashley Hale for dates and times.

Contact: Ashley Hale, NP-C
ashleyshale22@gmail.com
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Gettysburg/Hanover/Adams County Area Every Breath Counts Support Group
Gettysburg Hospital
Wellspan Community Room
147 Gettys Street
Gettysburg, PA 17325

Group meets: Please contact Phyllis Netherland for meeting dates and times.

Contact: Phyllis Netherland
pulmong2l@gmail.com

Ann Newman, RRT
717.316.2189

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PF Warriors of North Texas
William P. Clements Jr. University Hospital
2nd Floor Education Center
6201 Harry Hines Boulevard
Dallas, TX 75390

Group meets: Please visit website for details on meeting dates and times.

Contact: Bill Vick
ipfwarrior@gmail.com
972.612.8425

View Website
Advanced Lung Disease and Lung Transplant Support Group
University of Maryland Medical Center
29 S. Greene Street
GS106
Baltimore, MD 21201

Group meets: First Friday of every month
Time: 12:00 p.m.

Contact: June Kim, MD
410.328.8141
jkim@umm.edu

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St. Vincent Lung Transplant Support Group
Center for Advanced Medicine
Pulmonary Rehab Department
Cardiac Conference Room, 2nd Floor
3700 Washington Avenue
Evansville, IN 47750

Group meets: First Tuesday of each month
Time: 6:30 p.m.

Contact: Jackie Lannan, BSN, RN
812.485.5230
jnlannan@stmarys.org

Please call to confirm meeting date and time.
View Website
St. Louis Pulmonary Fibrosis Support Group

The Center for Advanced Medicine at Washington University and Barnes-Jewish Hospital
Third Floor
Farrell Conference Room 1
4921 Parkview Place
St. Louis, MO 63110

Group meets: Quarterly
Contact: Anna Ellis, RN
314.273.1457
 
Tara Molina, RN
314.286.2352
View Website
St. Francis Sleep Allergy and Lung Institute IPF Support Group
St. Francis Sleep Allergy and Lung Institute
802 North Belcher Road
Clearwater, FL 33765

For more information, please contact Erin Conneely at 727.447.3000, ext. 224, or by email at econneely@stfrancismed.com.

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Oklahoma City Idiopathic Pulmonary Fibrosis Support Group
Integris Baptist Medical Center
3300 NW Expressway
Conference Rooms J, K, and L
Oklahoma City, OK 73112

Group Meets: First Tuesday of every month
Time:  6:30 p.m. - 7:30 p.m

Contact: Cheryl French
832.366.5055 or
Lisa Ball 405.713.4277  
View Website
The Ohio State University Pulmonary Fibrosis Support Group
Contact Ruthann Kennedy, CNP, for meeting dates, times and locations.

Ruthan Kennedy, CNP
Phone: 614.688.6540
Ruthann.kennedy@osumc.edu
View Website
Dallas/Fort Worth Pulmonary Fibrosis Support Group
Group meets: Quarterly (Saturday or Sunday)

Time: 1:00 p.m. - 3:00 p.m.

Location:
Texas Health Presbyterian Hospital Allen 
Conference room off of the main hospital entrance
1105 Central Expressway North 
Allen, Texas 75013 

Contact: Cindi Brannum, Support Group Leader
cbrannum@att.net
972.754.1125

View Website
Interstitial Lung Disease Support Group
Scripps Clinic, Anderson Medical Center
6th Floor, Division of Pulmonary Medicine
9898 Genesee Ave
La Jolla, CA 92037

Group meets: Second Friday of every month
Time: 1:00 p.m. to 2:30 p.m.

Contact: Patty Averell
858.652.5430
averell.patty@scrippshealth.org

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IPF Support Group
Paloma Medical Group
30230 Rancho Viejo Road
Suite 200
San Juan Capistrano, CA 92675

Group meets monthly. Contact Dina Abdo for more information.

Dina Abdo
949.443.4114
dina@palomamedical.com

 

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Just Breathe Pulmonary Fibrosis Support Group
Alamance Regional Medical Center
1240 Huffman Mill Road
Burlington, NC 27215

Contact Debra Baldwin for meeting dates and times.

Debra Baldwin
336.395.3836
Dcurrie520@yahoo.com
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Ocala Airheads
Medical Health Center
1714 SW 17th Street
Ocala, FL 34471

Please contact Tina Sayan at 352.351.7295 to confirm dates and times.

Contact: Tina Sayan
Phone: 352.351.7295
 

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Eastern Florida Pulmonary Fibrosis Support Group
Wuesthoff Medical Center – Rockledge
1010 Beverly Drive
Rockledge, FL 32955

Group meets: Second Tuesday of every month
1:00 p.m.

Contact: Dennis Linhart
Phone: 321.638.0179
Email: dlinhart1@cfl.rr.com
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Breathe Easy Syracuse
St Joseph's Hospital Network Building
North Medical Complex
7246 Janus Park Drive
Liverpool, NY 13088

Group meets: Fourth Tuesday of every month
Contact Beverly Wernet to confirm dates and times.

Contact: Beverly Wernet
Phone: 330.265.9687 
Email: beverlywernet@gmail.com
View Website
Pulmonary Fibrosis Support Group of Central Valley California
Sunnyside Regional Library
5556 East Kingscanyon Road
Fresno, CA 93727

Group meets: Third Friday of every other month
Time: Contact Cornelio Ynson to confirm meeting dates and times

Contact: Cornelio Ynson
Contact phone number: 559.288.4781
Contact email: ccynson@aol.com
 

View Website
UVA ILD/PFF Support Group
UVA at Zion Crossroads
Pulmonary Clinic
1015 Spring Creek Pkwy
Zion Crossroads, VA 22942

Group meets: March 16th and May 18th (every two months)

Time: 1:00 p.m. - 2:30 p.m.

Contact: Bobby Flood
434.924.2815
raf6n@virginia.edu
View Website
Pulmonary Fibrosis Mid-Missouri Support Group

University Hospital
Room 1L03
One Hospital Drive
Columbia, MO

Group meets: First Thursday of every month

Time: 3:00 p.m. – 4:30 p.m.

Contact: Al and Judy Frost
573.823.0008
alandjudy2004@yahoo.com
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Pulmonary Fibrosis Support Group Wescoe Foundation for Pulmonary Fibrosis
St. Luke’s University Hospital / Bethlehem Campus
Priscilla Payne Hurd Education Center
Room 105
801 Ostrum St.
Bethlehem, PA 18015

Group meets: Second Thursday of every month 

Time: 2:00 p.m. – 3:30 p.m.

Contact: Jennifer H. Wescoe, M.Ed., NCC
484.553.6340
Jennifer@wescoefoundationforpulmonaryfibrosis.org
View Website
Pulmonary Fibrosis Support Group

Lexington Medical Center
Main Campus – North Tower
2720 Sunset Boulevard
West Columbia, SC 29169

Group meets: Second Monday Every other Month
Time: Please contact Carolyn Brooks for the times of meetings.

Contact: Carolyn Brooks
803.960.9949



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New Orleans Pulmonary Fibrosis Support Group
 
Tulane Hospital and Clinic
1415 Tulane Avenue
Room 7206
New Orleans, LA 70112

Group Meets: Second Wednesday of Every Month
Time: 10:00 a.m.

Contact: Sandy Ditta
504.988.4040
sditta@tulane.edu

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Virginia Peninsula Pulmonary Fibrosis Support Group

5424B Discovery Park
Williamsburg, VA

Please contact Bill Burke for meeting dates & times.

Bill Burke
wjb@cox.net

View Website
University of Pennsylvania Interstitial Lung Disease Support Group

Smillow Center for Translational Research
Room 01-102
3400 Civic Center Blvd
Philadelphia, PA 19104

Please contact Jamie Lederer for dates & times.

Jamie Lederer, Interstitial Lung Disease Nurse Practitioner
215.615.7242
Jamie.lederer@uphs.upenn.edu
View Website
Tulsa Pulmonary Fibrosis Support Group Meeting

St. Francis Hospital
Williams Medical Building
6585 S. Yale
Tulsa, OK 74136

Group meets: First Wednesday of each month
Time: 6:30 p.m. – 7:30 p.m.

Jerry Russell
918.373.4934
jrussell@sbcglobal.net
View Website
IPF/ILD Support Group of South Bay
Torrance Memorial Specialty Center
2841 Lomita Blvd  3rd Floor
Torrance, CA 90505

Group meets: 2nd Monday of every month 1:30 -3:00pm

Contact: 
Jackie Tosselini
310 303 7079

Valeria Hatcher
323.293.8663 
 
Joanne Bardwil
310 630 9639
View Website
Pulmonary Fibrosis Support Group
New Jerusalem Tabernacle of Worship
6310 Hulen Bend Blvd.
Fort Worth, Texas 76132

Group Meets: Every 3rd Friday of every month

Time: 2:00 pm

Contact: Robert L. Young Sr.
817.709.6193
njtwchurch@yahoo.com

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Suffolk County Pulmonary Fibrosis Support Group
Stony Brook University Medical Center
Lobby Conference Room
100 Nicolls Road
Stony Brook, NY 11794

Date:  Please contact Jacqueline Skarre or Dr. Alpa Desai

Time: 5:00 p.m. - 6:00 p.m.
 
631.444.3869
ildcenter@stonybrookmedicine.edu
View Website
Pulmonary Fibrosis Together Support Group
St. Thomas More Catholic Church
St. Theresa Meeting Room
Main Floor Parish Center
940 Carmichael Street
Chapel Hill, NC  27514

Group meets: First Friday of every other month. Please contact Shannon Tilley or Mary Tate Moon to confirm dates and times.

Contact: Shannon Tilley
Contact phone number: 919.668.8854
Contact email: Shannon.tilley@duke.edu

2nd Contact Name: Mary Tate Moon
2nd Contact phone number: 919.435.1937
2nd Contact email: mtategraham@embarqmail.com



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Pulmonary Fibrosis Together Support Group
Murrieta Pulmonary Fibrosis Support Group Meeting
Murrieta, California

Cal Oaks Therapy Center
40976 California Oaks Rd.
Murrieta, CA 92562

Group meets: First Thursday of each month
Time: 11:00 a.m.

Contact: Ashley Forester
Phone: 951.698.5556
Email: caloakstherapycenter@gmail.com
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Temple IPF Support Group – Montgomery County Campus
Temple Lung Center/OAKS campus
Temple Health OAKS 
450 Cresson Blvd. Suite 200
Oaks, PA 19456
 
Group meets quarterly on Saturdays starting September 30, 2017
Time 12:00 pm-1.30 pm
 
Contact: Michelle Vega-Olivo
215.707.5864
michelle.vega@tuhs.temple.edu 
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Better Breathers Club

 

Christiana Hospital
Valet parking at main entrance (free with handicapped parking tag)
4755 Ogletown Stanton Rd. 
Newark, DE 19713
 
Group meets every other month 
 
Upcoming Groups: 
Wednesday, September 6, 2017  from 1:00 p.m. – 2:30 p.m. (Rm. 1303, Cafeteria)
Wednesday, Nov. 8, 2017 from 12:30 p.m. – 2:00 p.m. (Rm. 1100)
Wednesday, Jan. 3, 2018  from 12:30 p.m. – 2:00 p.m. (Rm. 1303, Cafeteria)
Wednesday, March 6, 2018 from 12:30 p.m. – 2:00 p.m. (Rm. 1100)
Wednesday, May 1, 2018 from 12:30 p.m. – 2:00 p.m. (Rm. 1100)
 
Contact: Sharon Stallings (Monday – Friday, 7:00 a.m. – 3:00 p.m.)
302.623.5641
View Website
Monmouth Pulmonary Fibrosis Support Group
Monmouth Pulmonary Support Group
30 Corbett Way
Eatontown, NJ 07727
 
Group meets: Third Thursday of every month starting Thursday, September 21, 2017
 
Time: 2:00 p.m. – 3:30 p.m.
 
Contact: Dayna Soluri, AGACNP-BC
Dayna.Soluri@gmail.com
732-380-0020 ext.3
 

View Website
Geisinger Medical Center/Danville Pulmonary Fibrosis Support Group
Geisinger Medical Center/Danville
HFAM Community Room
100 N. Academy Ave.
Danville, PA 17822
 
Group meets: Starting Thursday, October 5, 2017.
Contact Jennifer H. Wescoe, M.Ed., NCC for more information.
 
Time: 2:30 p.m. – 4:00 p.m.
 
Contact: Jennifer H. Wescoe, M.Ed., NCC
jennifer@wescoefoundationforpulmonaryfibrosis.org
484-553-6340
 
 
 

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The Next Breath Support Group
Church at Charlotte South Park
2500 Carmel Rd
Charlotte, NC 28226

Group meets: Second Tuesday of each month
Time: 7:00 p.m. – 8:30 p.m.

Contact: Diane Cox 
704.773.2434
DDC1219@gmail.com
 

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East Valley ILD Support Group
Mesa Library
Board Room
64 East First Street
Mesa, AZ 85201

Group meets: First Monday of each month
Time: 6:00 p.m. – 7:00 p.m.

Contact: Trevia and Sam Allen 
602-463-1883 
samuel.allen1968@gmail.com

Contact: Deljean Buenaventura, FNP-C 
Deljean.buenaventura@dignityhealth.org
 
 

View Website
INTEGRIS Bass Pulmonary Fibrosis Support Group
Integris Bass Baptist Health Center
Northeast Conference Room
600 S Monroe St.
Enid, Oklahoma 73701
 
Group Meets: 2nd or 3rd Thursday every other month
 
Time: 5:00 p.m.
 
Contact: Brenda Jordan, RRT
580.616.7671
Brenda.Jordan@integrisok.com
 

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Healthy Living Pulmonary Fibrosis Support Group at UMC
Healthy Living Institute
901 Rancho Ln #180
Las Vegas, NV 89106

For more information, please contact Lisa Pacheco, RN, Director of Healthy Living Institute at lisa.pacheco@umcsn.com or Alicia Jones, RT, Director of Respiratory Services at Alicia.jones@umcsn.com
 

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Saratoga County IPF Support Group
Saratoga Hospital
6 Care Lane
1st Floor 
Saratoga Springs, NY 12866

Please contact Marie or Susan for more information at 518-886-5676. 
View Website
West Texas Pulmonary Fibrosis Support Group
Medical Center Health System Centers for Health & Wellness
Class room B
8050 E. Hwy 191
(191 & Faudree Road)
Odessa, Texas 76765

Group meets: Every 3rd Tuesday of every month

Time: 7:00 p.m. - 8:30 p.m.

For more information, please contact Sharla Free, RRT, at afree@echd.org or 432-640-1472
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Capital Region IPF Support Group
400 Patroon Creek Boulevard
Suite 102
Albany, New York 12206

Date: Second Wednesday of the month

Time: 6:00 p.m. – 7:30 p.m.

For more information, please contact Kathy Ristau at 518.525.5916. 
View Website
Better Breathers Club Support Group

Beaumont Medical Office
2563 Little Mack
Lower Level Classroom
St. Clair Shores, MI 48081

Date: Second Thursday of the month
Time: 12:00 p.m. – 1:00 p.m.

2018 Schedule:
January 11
February 8
March 8
April 12
May 10
June 14
July 12
August 9
September 13
October 11
November 8
December 13

For more information, please contact Joanne Burke at Joanne.Burke@beaumont.org


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