About the PFF

About the Pulmonary Fibrosis Foundation

The mission of the Pulmonary Fibrosis Foundation (PFF) is to help find a cure for idiopathic pulmonary fibrosis (IPF), advocate for the pulmonary fibrosis community, promote disease awareness, and provide a compassionate environment for patients and their families.

The PFF’s strategic plan includes initiatives to:

  • Increase funding for PF research through independent foundation grants, and partnership grants with the American Thoracic Society, the American College of Chest Physicians, and the National Institutes of Health.
  • Facilitate collaboration between the academic research community and the bio-pharma industry.
  • Establish a Pulmonary Fibrosis Foundation Patient Registry and Care Center Network.
  • Foster interaction and innovation among physicians, researchers, allied health professionals, patients, and caregivers at our biennial international conference, PFF Summit: From Bench to Bedside.
  • Expand our support group network to include the international PF community, assist in the development of local support groups, and improve access to the PFF online support groups.
  • Implement new patient education and disease awareness programs utilizing webinars, online support services, and social media platforms.
  • Support the needs of our constituents through legislative advocacy.
  • Increase disease awareness though education, traditional media, social media, and community events.

Our History

The Pulmonary Fibrosis Foundation (PFF) is a 501(c)(3) nonprofit organization that was founded in 2000 by two brothers, Albert Rose and Michael Rosenzweig, PhD. Their sister Claire had died from idiopathic pulmonary fibrosis (IPF), and the brothers were both later diagnosed with the disease. Their vision shaped the PFF to become a leader in the pulmonary fibrosis community for research, advocacy, awareness, and patient support. In February of 2002 Albert Rose succumbed to the disease.

Dr. Rosenzweig was the Foundation’s first President and Chief Executive Officer. He worked tirelessly and passionately to build the Foundation, fund research, and create a financially viable entity. He also helped recruit an outstanding Medical Advisory Board, which has provided keen insight and direction.

Daniel M. Rose, MD, the son of Albert Rose and chairman of the Board of Directors, assumed the positions of President and CEO when Dr. Rosenzweig retired in March 2009 due to the progression of his disease. Dr. Rose had previously been a practicing cardiothoracic surgeon and Chief of Cardiothoracic Surgery at St. Vincent’s Medical Center in Bridgeport, Connecticut, for 19 years. Having had three relatives afflicted with IPF, he brings to the Foundation a family member’s passion and motivation, along with a broad medical background and a profound desire to lead the PFF into its second decade.

Dr. Rosenzweig lost his courageous battle against IPF on June 23, 2012. The Foundation honored him with a special tribute at our annual dinner, Breathe Benefit 2012: Community Inspiring a Cure, on Saturday, October 13, 2012.