Face-to-Face Support Groups
Below is a list of all known, active support groups in the United States and the United Kingdom. The Pulmonary Fibrosis Foundation makes every effort to keep this information as accurate as possible. Please note that information is subject to change for individual group listings. If you have any trouble contacting a group coordinator, please call us at 888.733.6741 and we'll help steer you in the right direction.
If you are a group coordinator and would like to update your listing, please email us at info@pulmonaryfibrosis.org.
As always, please consult your personal physician or healthcare provider with any questions you may have regarding your specific medical condition, and whether participating in a support group is recommended.
ALABAMA
Montgomery
IPF Support Group of Montgomery
Location: Cardiopulmonary Classroom, First Floor
Montgomery Cardiovascular Institute
2119 East South Blvd.
On the campus of Baptist Medical Center South Blvd.
Dates for 2011: March 31, June 23, September 22, December 15
Time: 2:30 - 3:45pm
Contact: Maryluz Fuentes, MD, (334) 451-5273 Group Coordinator, or e-mail: mfuentes@baptistfirst.org
ARIZONA
Scottsdale
Pulmonary Fibrosis Support Group
Location: Via Linda Senior Center
10440 E. Via Linda
Scottsdale, AZ
(480) 312-5810
Meetings: Last Saturday of the month at 11:00am
Contact: Lillian (480) 570-9929 or email ladylmrogers@aol.com
Tucson
Arizona Affiliate Pulmonary Fibrosis Support Group
Location: The Home of Beth & Richard Kane
1130 W. Santo Domingo Circle
Tucson, AZ 85704
Meeting: Saturday, November 5, 2011 at 9:00 AM
Facilitated by: Zoë Dirks and Carlinda Dirks
RSVP: zdirks@gmail.com or phone 520.907.2582
Bagels, pastries and coffee will be provided
We will be joined by Donna M. Stout, RCP, CRT, a respiratory therapist from St. Joseph’s Hospital, Pulmonary Rehab Clinic.
Download Flyer
CALIFORNIA
Fontana
Inland Empire Pulmonary Fibrosis Support Group
Location: Kaiser Permanente,
9961 Sierra Avenue, Building 3 - 4th Fl - Blue North Room
Fontana, CA 92335
Meetings: Third Thursday of the month (except July and December)
Contact: Magdalena Pacheco (909) 730-5650 or email m4unont@aol.com
Los Angeles
Interstitial Lung Disease (ILD) Support Group
Location: David Geffen School of Medicine at UCLA
Division of Pulmonary and Critical Care Medicine
10833 Le Conte Avenue
Medical Plaza 200, Room 347
Los Angeles, CA 90095-1690
Meetings: Third Tuesday of Each Month
Time: 1:00 PM – 2:30 PM
Phone (310) 206-8950
FAX (310) 794-7093
Medical Director - Joseph P. Lynch, III, MD
Facilitator - Susan C. Golleher, RN
Norwalk
One Breath Foundation & Transplant & Pulmonary Fibrosis Support Group
Location: Call for location and time
Meetings: 3rd Sunday of the month
Contact: Gloria Rodriguez (562) 447-4785 or email glorry2god@aol.com
Rancho Mirage
Better Breathers Club
Location: Eisenhower Medical Center, 3900 Bob Hope Dr.
Meetings: Third Wednesday of the month 12pm-1pm
Contact: Julia Dugan, RN, RT 760-773-2031 or email jdugan@emc.org
This club is for IPF patients only.
Sacramento
Central Valley Pulmonary Fibrosis Support Group
Location: Sutter Cancer Center, 2800 L St., First Floor, Classroom 1 or 2
Meetings: 3rd Monday of the month (call for confirmation) 1:30 PM - 3:30 PM
Contact: Sandra Rock (916) 354-1324
San Francisco
Living Well with ILD Support Group
Location: Varies
UCSF Interstitial Lung Disease Program
400 Parnassus Avenue
San Francisco, CA 94143
Meetings: 2nd Tuesday of every month; 1:00 PM - 3:00 PM
Contacts: Sally McLaughlin, RN, MSN (415) 353-2577; Jane Berkeley Jane.Berkeley@uscf.edu
COLORADO
Wheat Ridge
Pulmonary Fibrosis Support Group
Location: Exempla Lutheran Rehabilitation Center
9830 I-70 Frontage Road South
Conference Room
Meetings: Last Tuesday of the month 2:00 – 3:30 PM
Contact: Brenda Crowe, CRTT 303-467-4133
CONNECTICUT
New Haven
Pulmonary Fibrosis Support Group
Location: North Haven Memorial Library
17 Elm Street, North Haven, CT 06473
Meeting: February 7, 2012
Featured speaker: Danielle Antin-Ozerkis, MD Director of the Yale Interstitial Lung Disease Program will be covering “Clinical Trials in IPF”.
Contact: RSVP by Jan 30th, 2012 to Elizabeth at 203-785-2509 or Elizabeth.tarquino@yale.edu
DELAWARE
Dover
Pulmonary Hypertension / Pulmonary Fibrosis Support Group
Location: Kent Pulmonary, 938 Bradford Street
Meetings: 2nd Tuesday of every month, 6:30 PM
Meeting information line: 302-328-3107 option 3
Newark
Pulmonary Hypertension / Pulmonary Fibrosis Support Group
Location: Christiana Care Hospital, 4755 Ogletown-Stanton Road
Meetings: 3rd Tuesday of every month, 6:30 PM
Contact: 302-328-3107 option 3
FLORIDA
Daytona Beach
IPF Support Group
Location: Florida Hospital Memorial Medical Center
301 Memorial Medical Parkway, Educational Dept. 11th Floor
Contact: Liz Griffith - 352-208-4773 | email lsacri@aol.com
Contact Liz for meeting dates and times
Fort Myers
Pulmonary Fibrosis support group
Location: HealthPark Medical Center, Room 2A
9470 HealthPark Circle, South Ft. Myers
Meetings: Third Friday of the month - 1:00 PM
Contact: Jim Puglise - 941-240-2535
Miami
Pulmonary Fibrosis Support Group for Patients and Caregivers
Memorial Hospital
3600 Washington St.
Hollywood, FL
Meeting: The second Thursday of every month
Take Hollywood Blvd. west from I-95 to Park Rd. ( about 1/2 mile). Go left or south on Park about 1/2 mile to Washington St. Turn right or west and look for the hospital about 1/2 mile up on the south side. 3600 Washington St. You'll need an ID card for security and then proceed to the Auditorium.
Contact: Terre Higgs (561) 860-2932 higgstk@bellsouth.net
Contact Terre for future meeting dates.
Naples
Naples Pulmonary Fibrosis Support Group
This group is for pulmonary fibrosis patients, caregivers, and families
Location: North Collier Hospital, Cafeteria
Immokalee Road, Naples
Meetings: First Friday of the month - 1:30 PM
Contact: Richard Sampson (239) 353-6564
Naples
Naples Lung Transplant Support Group
This group is for those who have had transplants and their family members
Location: North Collier Hospital, Pulmonary Rehab Center
Immokalee Road, Naples
Meetings: Second Wednesday of the month - 4:00 PM
Contact: Richard Sampson (239) 353-6564
GEORGIA
Atlanta
Atlanta Support Group
Location: Piedmont Hospital
Pulmonary Rehab Department
1968 Peachtree Rd. NW
Atlanta, GA 30309
Date: August 30, 2011
Time: 11:30 AM
Contact: Marcy Solmson - marcysolmson@comcast.net | 770.337.1773
Contact Marcy for future dates and times.
ILLINOIS
Chicago and suburbs
The Breakfast Club, Pulmonary Fibrosis Support Group
This meeting is open to Pulmonary Fibrosis patients and their families and friends.
Meetings: 4th Saturday of the month
Time: 10:00 AM
Location: Elmhurst Memorial Center for health
Contact: Leanne Storch 888.733.6741 to RSVP
Naperville
Pulmonary Fibrosis Support Group
Meetings: Thursday 10-11:30 AM - 1st Thursday of each month.
Location: Edward Hospital, 801 S. Washington Street, Naperville, IL
Contact: Donna Serlin, BS, RRT at Edward Hospital Pulmonary Rehab
630-527-3389 for more information and directions to meeting space
INDIANA
Evansville
Meetings: 2nd Tuesday of each month
Time: 4-5 pm
Location: Deaconess Hospital
600 Mary St.
Evansville, IN 47747
Contact: Julie Morgan, RRT, AE-C, Education Coordinator
812 450 2448 | julie.morgan@deaconess.com
Resource Center 812-450-6000
Evansville
St. Mary’s Pulmonary Fibrosis Support Group
Meetings: 2nd Monday of the month
Time: 6:30 pm
Location: St. Mary’s Pulmonary Rehab
Cardiac Conference Room, 2nd Floor, Center for Advanced Medicine, Evansville, IN
Contact: St. Mary’s Pulmonary Rehab 812-485-5230,
Christa Shore 812-963-9543 or Steve Williams 812-925-6894
Fort Wayne
Living with IPF
Open to family and friends with pulmonary fibrosis.
Meeting the 2nd Saturday every month in 2012.
Time: 10-11:30 am
Parkview North, 69 and Dupont Rd.
11115 Parkview Plaza Drive
Family Birthing Center Conference Room
Enter thru door 2B, past the coffee shop to the right
Contact: Bill 260-570-3988 and Dianne 260-452-9308
KANSAS
Junction City
Flint Hills Pulmonary Fibrosis Support Group
Location: Episcopal Church of the Covenant
314 N. Adams Street
Junction City, KS
Meetings: 1st Tuesday of every month
Time: 7pm
Contact: Jim Williams 785-375-4288 email AListeningEar777@aol.com
This support group is open to patients and caregivers
MARYLAND
Baltimore
Bay Bridge Breathers
Harbor Hospital's LifeResource Center 2990 S. Hanover St.
Meetings: Monday - noon
For those with emphysema, chronic bronchitis and pulmonary fibrosis.
Contact: 410-350-8255 for specific meeting dates
MASSACHUSETTS
Pittsfield
IPF Support Group of The Berkshires
Berkshire Medical Center, Pittsfield, MA
Private Dining Room B Ground Floor
Contact: Dolores Eckert 413-243-1797 or doleckert@msn.com / Butch 413-698-3195 or cfezzie1@berkshire.rr.com for meeting dates and times
MICHIGAN
Ann Arbor
The Quest For Breath IPF Support Group
meets the second Saturday of each month: 10 am - 12 pm
The University of Michigan Pulmonary Rehabilitation Program
Burlington Office Center, Lower Level
325 E. Eisenhower Parkway, Ann Arbor, MI, 48103
Contact: Julie Hyzy, MSW 734-657-6605, Email: juliehyz@med.umich.edu
Sterling Heights
Location: Presbyterian Church of Utica, 11300 Nineteenth Mile Rd., Sterling Heights, MI 48314
Meetings: 2nd Tuesday of each month: 3:00 to 5:00 PM
Contact: Darlene S. Watkins, RRT 586-573-5763 Email: darlene.watkins@stjohn.org
MINNESOTA
Minneapolis
Location: Bethlehem Baptist Church
720 - 13th Avenue South
Minneapolis, MN
612-338-7658
Meeting: Second Tuesday of every month
Time: 6:30 PM
Contact: Jan Titus 952-484-6764 | jltitus@comcast.net
NEW JERSEY
Morristown
Garden State Pulmonary Fibrosis Support Group
Location: Morristown Hospital
100 Madison Avenue
Morristown, NJ 07962
Conference Room 3B
Meetings: Last Wednesday of every month, 7:00 PM
Contact: Barbara Murphy - bjmurphy21@comcast.net | 908-276-3394
NEW MEXICO
Albuquerque
Pulmonary Fibrosis New Mexico Affiliate Support Group
Location: IHOP (2020 Buena Vista Dr. SE Albuquerque, NM 87106, on Gibson near the freeway)
Meetings: First Monday of every month: April 4, May 2, June 6, August 1, Sept 5, October 3, November 7, and Dec 5
Time: 6pm – 7pm
Contact: Please RSVP for the meeting by contacting Shirley Munoz 505-507-6380 or emailing jsfmunozapt@yahoo.com
NEW YORK
Sleepy Hollow
Pulmonary Fibrosis Support Group
Location: Phelps Memorial Hospital, Pulmonary Gym- B-Level
Meetings: 12:00PM - every other month call Susan for information
Contact: Susan DiFabio - 914-366-3712 sdifabio@stellarishealth.org
Reservations Required
NORTH CAROLINA
Cary
Pulmonary Fibrosis Support Group
Location: Amberly Residents Club, 1075 Residents Club Drive, Cary, N.C. 27519
Meeting: Fourth Saturday of every month
Time: 10:00 am
Contact: Carmen - 919-461-7122 if no answer please leave message
OREGON
Springfield
Spirited Breathers
Location: Oregon Heart and Vascular Institute
Riverbed, 3311 Riverbend Drive, Conference Room 12C
Meetings: 2nd Thursday of the month
Time: 3-4:30PM
Contact: Susan Pfanner - 541-222-7442 or 888-240-6484/email spfanner@ohvi.org
Portland
Portland Pulmonary Fibrosis Support Group
Legacy Good Samaritan Hospital
Building 2 / 2nd Floor Conference Room
1040 NW 22nd Avenue
Portland, OR 97210
Meets: Monthly on the third Thursday from 2:30-4:00
For more information, please contact
Mike Henderson 503.936.8395 (mike.henderson@prolifiq.net) or
TJ Christenson 503.807.4054 (tjchristenson@gmail.com)
Tualatin
Pulmonary Fibrosis/Lung Transplant Support Group
Location: Legacy Meridian Park Hospital, Community Health Educational Building, 19300 SW 65th Avenue, Room 104 (North end of Meridian Park Hospital)
Meetings: 1st Thursday of the month, 2:30 - 4:30 PM
Contact: Lynn Holter, RN 503-692-2548 or lholter@lhs.org
PENNSYLVANIA
Hershey
Idiopathic Pulmonary Fibrosis Support Group at Hershey
Location: Penn State Hershey Medical Center
Conference Center Room 302A
Meetings: Meet regularly (usually) last Monday of every month, starting between 5:00 and 5:30 pm
Contact: Anne Dimmock - Coordinator 717-531-2925 | adimmock@hmc.psu.edu
Pittsburgh
IPF support group
Location: UPMC Presbyterian
Conference Room 1105 BC, 11th floor
Meetings: 2010 dates: April 5, May 3, June 7, November 1
Time: 1:00 - 3:00 PM
Contact:Terri Heinrich (412) 864-2047 for more information.
Email: simmonsILD@upmc.edu
http://www.upmc.com/Services/simmons-interstitial-lung-disease/Pages/pat...
TENNESSEE
Nashville
IPF Support Group for Patients and Families
Location: Vanderbilt University Medical Center
1211 Medical Center Drive
Nashville, TN 37232
Meetings are held on the second floor of The Vanderbilt Clinic (TVC) in rooms 2702 & 2703.
Meetings: Noon on the second Monday of the month
For more information please contact crystal.a.lowe@vanderbilt.edu or Wendi Mason wendi.mason@vanderbilt.edu
Also, visit the support group website
TEXAS
Dallas
Dallas Support Group
Meetings: Second Thursday of the month, 6:30PM - 8:00PM
Location: Professional Office Bldg. II St. Paul Hospital Campus (Across Inwood from the UTSW South Campus), Garage parking is by the entrance facing Record Crossing ($3.00 to park - cash or check), Go into the Professional Building walk across the lobby to the St. Paul Professional Bldg elevators, on the first floor, across from the elevators, will be a sign with the room number HQ 1.200, someone will help patients find the exact location from there.
Contact: Barbi.Lange@UTSouthwestern.edu or 214-648-6729
Houston
Pulmonary Fibrosis Support Group
Meetings and Location: Jan, March, May, July, Sept, Nov - Luby Lunches (various locations); Feb, April, June, Aug, Oct, Dec - Kelsey Seybold Main Campus (2727 W. Holcombe Boulevard, 2nd Floor imaging conference room, Houston)
Time: 11:00am - 1:00pm - light lunch provided
Contact: Jan Orndorff: (281) 348-2378 (281) 844-5300 (cell) or Jan3145@aol.com
San Antonio
Pulmonary Fibrosis Support Group
Location: Church Triumphant (meeting in the hall behind Church building)
339 West Hutching Place
Meetings: Second Saturday in each month from 1:00pm to 2:30pm
Contact: Dot Delarosa: (210) 836-4361 or Jan Orndorff: (281) 348-2378
UTAH
Salt Lake City
Location: University of Utah Lung Health Research Center
410 Chipeta Way #221
Salt Lake City, Utah 84108
Upcoming Meeting: Thursday, June 16th, 2011
Time: 12:00 PM
Future Meetings: August 25, 2011 and October 20, 2011
Contact: Laurie Brewster 801-581-5864
VIRGINIA
Falls Church
Location: Inova Fairfax Hospital, 3300 Gallows Road, Conference Center, Room 5
Meetings: Varies
Contact: Jane Harrison: (703) 776-3203, jane.harrison@inova.com
Richmond
Breath Matters Suppport Group of Virginia
www.breathmatters.org
Location: CJW Medical Center
Chippenham Hospital Campus
Bosher Auditorium
Free Valet Parking
Meetings: 2nd Monday of the Month 1:30 - 3:00PM
Contact: Russell Glover - Russellglover@verizon.net.
WASHINGTON
Everett
Pulmonary Fibrosis Support Group - Lung Rangers
Location: Medical Office Building -1330 Rockefeller
Meetings: Third Tuesday of the month, 4:00 - 5:30 PM
Contact: Please call to RSVP Annie @ anna.roth@providence.org or Rebecca @ rebecca.rose@providence. org | (425) 261-3780
Seattle
Pulmonary Fibrosis Support Group
Location: University of Washington Medical Center
1959 NE Pacific
Meetings: Last Tuesday of every month 1:00 - 3:00 PM
Contact: David Sherry (425) 888-0004
WISCONSIN
Milwaukee
Milwaukee Breath Scroungers (MBS) - Pulmonary Fibrosis Support Group
Location: Root River Center
7220 W. Rawson Avenue, Franklin, WI 53132
Meetings: 2nd Thursday of each month, 1:30 PM - 3:30 PM
Contact information: Sheri Baldikowski, President, (414) 313-4698
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UNITED KINGDOM
Wales
Pulmonary Fibrosis Support Group
Location: Hilton in Newport South Wales
Meetings: Tuesday September 7th, Tuesday October 5th, Tuesday November 2nd, Tuesday December 7th - All meetings held at 7:00PM
Contact: http://pulmonaryfibrosiswales.co.uk/#/contact-us/4542318005
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Additional Support Groups
If you know of any additional support groups that are not listed above or would like to participate in the formation of a new group, please contact info@pulmonaryfibrosis.org or call 888-733-6741
