Jul 31, 2015, 09:50 AM
We enthusiastically announce the formation of the Research Advisory Forum (RAF) as an independent committee within the Pulmonary Fibrosis Foundation (PFF). The RAF will provide tremendous value to the pulmonary fibrosis (PF) community and to the PFF by bringing together a diverse group of stakeholders who do not typically have the opportunity to engage and by driving scientific discovery and innovation to support the PFF’s ultimate goal to find a cure for PF.

The RAF will consist of a broad group of key stakeholders who share a commitment to advancing PF research: clinicians, academics, PFF staff, patients and their caregivers, and members of industry, as well as representatives from governmental agencies such as the NIH and FDA. The RAF will pinpoint key areas of research in the PF space and strategies to efficiently advance these identified research priorities. In an advisory capacity to the PFF, the RAF will make strategic recommendations as to how the Foundation’s current programs and resources, in particular our first-of-its-kind Care Center Network (CCN) can support research priorities. In addition to providing guidance to the PFF, the RAF will also advance various thought leadership initiatives for the broader PF community, which may include the development of treatment guidelines or treatment workshops.

The PFF is currently accepting nominations for RAF membership. Download the nomination form PDF below. Nominations will close on Monday, September 14. Notification of acceptance will be made in late September. If you are chosen to sit on the Research Advisory Forum, please be prepared to join us for our first in-person meeting in Washington, DC on Thursday, November 12 in conjunction with the PFF Summit. If you are not already registered for the Summit, please complete your registration online. Please email us at if you have any questions.

We believe that the thought leadership of the RAF will result in meaningful advancements in the field of PF research that will ultimately translate into a benefit for patients.

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