Aug 8, 2014, 14:18 PM
This week the Pulmonary Fibrosis Foundation (PFF) introduced an important data collection questionnaire for patients and caregivers. This survey is designed to collect essential insights about living with pulmonary fibrosis (PF). In addition, we want to learn about your opinions concerning new treatments and research efforts. If you are a patient or caregiver, please complete this online questionnaire. If you know someone living with PF and they aren't already receiving our emails, please share this message with them.

The survey responses will be kept anonymous. The PFF will then present the initial results of the questionnaire at the FDA Patient-Focused Drug Development Meeting on September 26 in Silver Spring, Maryland. This meeting is important because this will be the first forum in which patient feedback will be presented and reviewed by the FDA as proposed drug therapies are evaluated.

The PFF will continue to collect survey responses through December 2014. This data will help inform future PF disease education, awareness, and research efforts. Ultimately the responses will enable the medical community and the Foundation to better serve the PF community.

We greatly appreciate your taking the time to complete this vital survey and also sharing this information with others. If you have already submitted your survey - thank you. If you have not yet been asked to participate, please complete the survey today by following the link below.

If you have questions, please call the PFF Patient Communication Center at 844.TalkPFF (844.825.5733) or email

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