Community Programs

By actively engaging the PF community, the Pulmonary Fibrosis Foundation has developed essential programs available to those living and working with pulmonary fibrosis.

We remain focused on our mission to act as the trusted resource for all who are affected by this disease. Community programs include:

PFF Care Center Network

An expanding group of medical centers nationwide that have proven experience and expertise in treating patients with fibrotic lung diseases and are dedicated to improving the clinical care of those living with this disease. LEARN MORE

PFF Patient Registry

An electronic database of anonymous patient information that is independently managed by a Data Coordinating Center. The Registry collects information in a consistent manner from patients. LEARN MORE

PFF Summit

Our biennial health care conference is a unique meeting that facilitates an environment where world-renowned experts exchange ideas and information with fellow physicians, researchers, patients, caregivers, allied health professionals, and industry representatives. LEARN MORE

Pulmonary Fibrosis Awareness Month

The Pulmonary Fibrosis Foundation has designated September as Pulmonary Fibrosis Awareness Month. LEARN MORE

PFF Patient Communication Center

Provides patients, caregivers, and health care providers with the most up-to-date medical information, communicates the availability of support services, and provides information about other essential resources. LEARN MORE

PFF Oxygen Information Line

Provides information and resources to individuals using supplemental oxygen and to caregivers. LEARN MORE

PFF Support Group Network

Provides a forum for PF support group leaders to connect, exchange ideas, learn from one another, and discuss best practices for use at their meetings. LEARN MORE

PFF Ambassadors

Encourages and empowers patients, caregivers, and health care professionals to become spokespeople for the PF community on behalf of the Pulmonary Fibrosis Foundation. LEARN MORE

PFF Voices

PFF Voices is the Pulmonary Fibrosis Foundation’s telephone-based support group for pulmonary fibrosis patients, caregivers, family members and anyone else affected by this disease. LEARN MORE

PFF Educational Videos

Watch videos from our Life with Pulmonary Fibrosis Video Series, Disease Education Webinar Series, and Advocacy in Action Webinar Series to learn more about a variety of topics. LEARN MORE

Book a PFF Ambassador for your event. Call 844.TalkPFF >