Living with Pulmonary Fibrosis

Hi My name is Donna White and I was diagnosed with Pulmonary Fibrosis in September 2009 during a six day hospital stay. The first time I heard "scarring of the lungs" was while living in California in appoximately 2004. It was during this year I was diagnosed with Pneumonia for the first time.

It all started in October 2009 when I kept dealing with this dry hacking cough. Eventually I went to the doctor and he said it was a touch of bronchitis. He prescribed meds and I began immediately taking them. In a matter of 4 days things had worsened. I just was not feeling good. I woke up on a Saturday morning and of course we all have to go to the restroom. Well when i sat up I felt really light headed. I managed to get to the restroom and nearly passed out there. But I kept telling myself I had to get back to my bedroom. Well I did get to the bedroom just in enough time to grab onto the foot of my bed and then passed out.

“Hi, I’m Bob and I have Pulmonary Fibrosis.”
“Hi, Bob!”
Sounds like a 12-step program. If only it had a success rate like one.
For background, I’m a Marine Veteran, having joined the Corps out of high school in ’64 and volunteered for Vietnam in ’66. Please note there are no Ex-Marines or Former Marines.

Hi, I am Nancy and I am 61-years old and I am here today to explain about pulmonary fibrosis and how it has affected my life in the last few years.

I was seeing a doctor for emphysema for approximately three years, and my symptoms at that time were just shortness of breath. And it didn’t bother me too much on a daily basis as long as I took my medication.

My name is Joan and I was diagnosed with idiopathic pulmonary fibrosis. It was three years ago this coming May that my doctor knew about it.

The first thing down here in Arizona, because I live in another state part time in the summer, I had pneumonia. It started in March and they were giving me three different kinds of antibiotics and I couldn’t shake it.

Hi, I am Dyane. Eight years ago I was diagnosed with pulmonary fibrosis. Most people, when they look up pulmonary fibrosis on the Internet see that it’s usually fatal in two to five years. I am here to share my story with you and how I’ve fought for these eight years and to tell you that there is no expiration date stamped on your behind.

My mother died of pulmonary fibrosis in 1996.

I was diagnosed with PF almost 6 years ago, after having lung surgery to remove some suspicious spots on my lungs. After understanding what my diagnosis meant ( I had never heard of PF prior to that) I spent about three weeks depressed and scared, and telling my loved ones what my final wishes were. I was 45 years old at the time.

One day, I woke up, and realised that I had this day; Today!

I am 31, 32 next week and I have Pulmonary Fibrosis.

Four years ago in April, I became very ill with a kidney stone. The stone was lodged in the tube between the kidney and the bladder causing me to go septic. I was in a coma for two months on life support and also had to be treached. I had kidney failure, respiratory failure, stroke and other conditions.

Please watch video. Thank you.