President's Letter
Extending Our Reach Together
Dear Pulmonary Fibrosis Community,
As we enter the New Year, I want to acknowledge the many people who have supported the Pulmonary Fibrosis Foundation with their time, resources, and passion. I am continually impressed and motivated by the commitment, courage, and compassion of the pulmonary fibrosis (PF) community. Their involvement is critical to helping us fulfill our mission.
Reflecting on the successes of 2011, it was a year of fostering connections and collaborations. Programming, such as the IPF Summit 2011, brought together patients, researchers, physicians, nurses, other health care providers, industry representatives, and individuals from the financial community. It is our intention that this type of activity will lead to improved diagnosis and better patient care. Additionally, it is our hope that these interactions will help stimulate the research needed to find better treatments and ultimately a cure for idiopathic pulmonary fibrosis (IPF).
Additionally in 2011, we established the Research Fund to Cure PF, helped reintroduce the Pulmonary Fibrosis Research Enhancement Act into the 112th Congress, and established our National Affiliate Program. As a rapidly expanding national organization, the successes of 2011 only reinforce our commitment to provide programs and services that have a positive impact on PF patients, their families, and the medical professionals who treat them.
As we enter 2012, we are re-energized in our commitment to collaborate and make a difference. One of the our key initiatives in helping to find a cure for IPF is the establishment of a national IPF patient registry that will gather vital, uniform data to aid the research community in fighting this disease. Furthermore, we will continue to support critical research under the guidance of our expert Medical Advisory Board; will partner with other institutions and organizations to offer informative, educational webinars for patients and healthcare professionals; and will begin preparations for IPF Summit 2013.
We thank you for your support in 2011; you helped make it a milestone year for us and we look forward to our continued collaborations in 2012. Together we will make a difference in PF!
Sincerely,
Daniel M. Rose, MD
President and Chief Executive Officer
Pulmonary Fibrosis Foundation
