50 Events in 50 States
Pennsylvania
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Our goals are simple:
Increase Public Awareness - We need to spread the
word to increase the effectiveness of our fundraisers and to inform
people about the seriousness of the plight of people who suffer from
Pulmonary Fibrosis. There is a cure out there, but the researchers
need resources to find it. So please, tell your friends, family and
co-workers about us and our events. Invite friends via Facebook! |
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This race is in memory of: Timothy J. Ryan 1918-2009 & Terence D. Keane 1942-2007
Registration starts at 6:00 pm at Kildare's Restaurant. T-shirts will be awarded to the first 200 participants to register, Asics technical running shirts will be awarded to the age group winners, and cash prizes to the top 3 overall. Kildare's post race bash will have a 50% off draft beer Happy Hour for all runners!
Run for Research is designed to support runners and
walkers who desire to train for challenging events while committing
their efforts to help patients in need of a cure for Idiopathic
Pulmonary Fibrosis. Our program starts with three races in
Philadelphia. In return for fund raising participants receive: This event is organized by the Ryan, Manousos, & Brown Families.
Invite friends via Facebook!
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Running & Walking Endurance Training A Cure Is Just One Breathe Away!
Run for Research is designed to support runners and walkers who desire to train for challenging events while committing their efforts to help patients in need of a cure for Idiopathic Pulmonary Fibrosis. Our program starts with three races in Philadelphia. In return for fund raising participants receive:
· Professional training guidance · A structured training program which is easy to follow · Organized group training events · Opportunity to meet motivated people and to train towards a worthy cause Targeted Events Start with the Broadstreet 10miler, improve your conditioning, gain confidence and then stay with us all the way through the marathon. Our three races give you an opportunity to gradually step you way up to a full marathon!
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Previous Events
Third Annual Wescoe Walk
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Third Annual Wescoe Walk
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Amy Temarantz
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Wilkes-Barre, PA It
has been a year since Robert Temarantz was taken from us so
suddenly. Yet, each
of us remembers at least one particular moment in which Bob
touched our lives. Whether
he was a childhood friend who enjoyed playing baseball, or the
photographer that covered your wedding, or perhaps just a
wonderful friend whose strength and character formed a lasting
relationship. When
Bob fell ill from Pulmonary Fibrosis, he said his dream was to
see his two daughter’s graduate from high school.
Only part of that dream came true. Bob was forced to use oxygen
to breathe. The once
vibrant, energetic man was now literally “tied down” by his
oxygen tubing. He
had to forfeit his photography business, which was the most
devastating part of the ordeal.
The expensive medications that he had taken did not
seem to be working, and slowly Bob deteriorated.
A transplant just remained beyond his grasp: the only
“cure” for his disease. Pulmonary Fibrosis affects
more than 200,000 people. Each
year, 40,000 individuals expire annually, almost as much as
those who die from Breast Cancer.
Of all the deadly-diseases, Pulmonary Fibrosis takes the
most victims. However,
there are currently no effective treatments for the disease.
Medications are ineffectual.
The only option for these patients is a lung transplant,
the odds of which are narrow.
Pulmonary Fibrosis is often misdiagnosed as asthma,
emphysema, etc. Thus,
it is most likely that more people have this disease than are
diagnosed with it. With
no cure, no effective treatments, and little in the way of
research, this disease is a sure killer. I have decided to turn my
outrage over this unknown disease into action.
I am creating a series of events within my school
community to raise money and awareness for the disease,
including an outdoor film, a battle of the bands, a benefit
dinner, and a student dance.
However, I knew that concentrating my efforts towards the
younger population would not be effective, for I would be
forgetting the friends and family who still “can’t believe
that Bob’s gone.” Thus, I am asking for your
help. I am asking
you to make a donation to the Pulmonary Fibrosis Foundation, all
proceeds of which will be donated in honor of Robert D.
Temarantz. Your
donation would be put towards research and development of a cure
for Pulmonary Fibrosis. Your
contribution could develop a medication that could actually have
effectiveness. Or,
your contribution could discover a concrete cause of the
disease. Please make your checks
payable to the “Pulmonary Fibrosis Foundation.”
In addition, please mail your checks to the address
below. If possible,
have your contributions in by September 30th.
A donation, no matter how small, would be greatly
appreciated. My sincerest expression of gratitude toward any
donation you could make. Please
do not let this killer of Pulmonary Fibrosis go untamed.
Let my father not have died in vain. September, in the Sept
11th -- Sept
24th (or 25th) -- Student Mixer, -- For students at my
school, a club style dance Sept
28th -- Benefit Dinner in honor of Robert D. Temarantz; --
for the faculty, trustees, and parents at my school as well as
several family friends. A raffle will be held at the
dinner feat. donated products. All food has been donated.
Entertainment to be provided by my school's jazz band. River
Street Jazz Cafe... I am also selling ribbons (I
didn't know what were the colors for the foundation so I decided
to use red and blue -oxygenated and unoxygenated blood-) I have
also began a mail campaign to several family members and
friends. I am hoping that I can raise enough money to make
a difference! For more information contact: Ami Temarantz |
Run for
Research
