PFF Ambassadors - Patients & Caregivers

PFF Ambassador Program

The Power of Your Story

The PFF Ambassador program encourages and empowers patients, caregivers, and health care professionals to become spokespeople for the PF community on behalf of the Pulmonary Fibrosis Foundation.

PFF Ambassadors offer hope and inspiration to those affected with PF by speaking about their experiences, promoting disease awareness, and providing up-to-date information. Comprised of a diverse and dynamic group of patients, caregivers, and health care professionals, PFF Ambassadors undergo formal training to prepare for speaking and advocating on behalf of the Pulmonary Fibrosis Foundation and the PF community.

PFF Ambassadors complement our disease awareness and educational strategy, and are available to speak at PFF Care Center events, PF support groups, fundraising events, and other disease awareness programs.

To request a PFF Ambassador at your next event, call the PFF Patient Communication Center at 844.TalkPFF (844.825.5733) toll free, or email pcc@pulmonaryfibrosis.org.

 

PFF AMBASSADORS - PATIENTS AND CAREGIVERS

TALEENA

PFF AMBASSADOR - WASHINGTON

"Learn. Find a support group, or more than one support group, and LEARN from the others there. They are an invaluable resource."

QUICK FACTS

  • 48 YEARS OLD
  • LIVES IN EVERETT, WASHINGTON
  • CAREGIVER TO HER MOTHER WHO LIVED WITH IPF FOR SIX YEARS AFTER DIAGNOSIS

 

PETE

PFF AMBASSADOR - MICHIGAN

"I learned about the PFF. It was comforting to know that there was an advocate out there-that there was a voice speaking that much louder about the need to find a cure for this disease. I wanted to add my voice to it."

QUICK FACTS

  • 59 YEARS OLD
  • LIVES IN CHELSEA, MICHIGAN
  • DIAGNOSED WITH IPF IN FEBRUARY 2013

 

MICHELE

PFF AMBASSADOR - ILLINOIS

"In a world where no one knew what IPF was, the Pulmonary Fibrosis Foundation was a place to find the information we so desperately needed."

QUICK FACTS

  • 60 YEARS OLD
  • LIVES IN STREAMWOOD, ILLINOIS
  • CAREGIVER TO HUSBAND, JEFFERY, WHO WAS DIAGNOSED WITH IPF IN 2010

 

JOHN D.

PFF AMBASSADOR - MASSACHUSETTS

"When you're affected by IPF, your breathing becomes more difficult bit by bit, every day. It takes an awful lot of courage to face this irreversible process, and I am glad I don't have to muster up this amount of strength all by myself."

QUICK FACTS

  • 69 YEARS OLD
  • LIVES IN DALTON, MASSACHUSETTS
  • LIVING WITH IPF SINCE 2010

 

JOHN

PFF AMBASSADOR - CONNECTICUT

"I know that a transplant isn't the answer for everyone, but...I knew that I wanted to spend as much time with Paula as I could, and I was willing to take this chance to maybe increase that time."

QUICK FACTS

  • 65 YEARS OLD
  • LIVES IN STRATFORD, CONNECTICUT
  • LIVED EIGHT YEARS UNDIAGNOSED WITH IPF, DIAGNOSED ONE YEAR BEFORE GETTING A LUNG TRANSPLANT

 

JEFFERY

PFF AMBASSADOR - ILLINOIS

"Our living with IPF has been a challenge, no doubt. Our whole goal is to just BREATHE."

QUICK FACTS

  • 70 YEARS OLD
  • LIVES IN STREAMWOOD, ILLINOIS
  • DIAGNOSED WITH IPF IN 2010
  • HIS CARE PARTNER MICHELE IS ALSO A PFF AMBASSADOR

 

DOUG

PFF AMBASSADOR - MISSOURI

"Life is 10% of what happens to you and 90% of how you react."

QUICK FACTS

  • 67 YEARS OLD
  • LIVES IN ST. LOUIS, MISSOURI
  • LIVED FOUR YEARS DIAGNOSED WITH IPF BEFORE RECEIVING A LUNG TRANSPLANT IN 2010

 

DIANE

PFF AMBASSADOR - NEW JERSEY

"I am a sponge absorbing all I can about IPF, because being aware of what is going on with this disease allows me to have a more informative discussion with my doctor during my visits."

QUICK FACTS

  • 49 YEARS OLD
  • LIVES IN MONROEVILLE, NEW JERSEY
  • DIAGNOSED WITH IPF IN 2013

PFF AMBASSADORS - health care professionals

CATHY BROWN, RN
CHICAGO, ILLINOIS
UNIVERSITY OF CHICAGO

DEBORAH DAHLGREN, RN
ANN ARBOR, MICHIGAN
UNIVERSITY OF MICHIGAN

KENZIE FURLONG, RN
PITTSBURGH, PENNSYLVANIA
UNIVERSITY OF PITTSBURGH

JENNIFER HAYES, RN
SEATTLE, WASHINGTON
UNIVERSITY OF WASHINGTON

SALLY MCLAUGHLIN, RN, MSN
SAN FRANCISCO, CALIFORNIA
UNIVERSITY OF CALIFORNIA SAN FRANCISCO

TAMRA PEREZ, RN
LOUISVILLE, KENTUCKY
UNIVERSITY OF LOUISVILLE

CHRIS SCHUMANN, MS, RCEP, CES
BIRMINGHAM, ALABAMA
UNIVERSITY OF ALABAMA AT BIRMINGHAM

EMMANUELLE SIMONET, MA, CCRP
MIAMI, FLORIDA
UNIVERSITY OF MIAMI

CAROLYN SPADA, RN
SEATTLE, WASHINGTON
UNIVERSITY OF WASHINGTON

JANET TALBERT, MS, CGC
DENVER, COLORADO
NATIONAL JEWISH HEALTH

 

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