PFF Patient Communication CenterPFF Patient Communication Center

PFF Patient Communication Center

The first-ever comprehensive resource for the PF community

For those living with pulmonary fibrosis, obtaining the most accurate and current information can be a challenging and frustrating task. In response to these concerns, the Pulmonary Fibrosis Foundation launched the PFF Patient Communication Center (PCC).

The PCC, a dedicated call center, provides patients, caregivers, and health care providers with the most up-to-date medical information, communicates the availability of support services, and provides information about other essential resources.

A central information hub

The PCC responds to inquiries from patients, caregivers, family members, and health care professionals on many topics, including:

  • Pulmonary fibrosis disease education
  • Locating a PFF Care Center or other medical center
  • Starting or joining a support group
  • Information about clinical trials 

Proactively engaging the PF community

Using a variety of communication channels, the PCC reaches the pulmonary fibrosis community through:

  • Dedicated toll-free phone line
  • Dedicated email
  • Online and in-person support groups
  • Social media
  • Educational webinars hosted by PF experts
  • Reserve a PFF Ambassador for your next program or event 

Trusted educational resources

As the leading patient advocacy organization for PF, the Pulmonary Fibrosis Foundation offers a variety of educational resources, including:

  • Pulmonary Fibrosis Patient Information Guide
  • PF Disease Awareness Poster
  • Physician Notepad
  • Support Group Leader Guide
  • Webinars

To speak with someone today, please call 844.TalkPFF (844.825.5733) or email pcc@pulmonaryfibrosis.org.

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