PULMONARY FIBROSIS FOUNDATION PROGRAMS RECEIVE BOOST IN LEAD SPONSORSHIP OF THE PFF CARE CENTER NETWORK AND THE PFF PATIENT REGISTRY

May 23, 2014, 13:16 PM

The Pulmonary Fibrosis Foundation (PFF) Patient Registry and the PFF Care Center Network (CCN) is made possible by the generous support of sponsors. Lead sponsor InterMune Chairman, CEO and President Daniel Welch presents a $1,050,000 check to PFF Chief Medical Officer Gregory Cosgrove, MD, during the 2014 ATS conference in San Diego. Furthering the PFF’s commitment to help advance disease education initiatives, the PFF Patient Registry will become the largest collection of pulmonary fibrosis (PF) patient data in the world and housed within the expanding PFF Care Center Network sites, which will improve the clinical care of those living with PF.

"PF patients and caregivers are overwhelmed with the anticipation that the PFF CCN and the PFF Registry will help the PF community in ways only before imagined. This is the lifeline we’ve been advocating for and will support every step of the way." - PFF Patient Ambassador Kathy Biggs, MSPT

"The PF community knows the potentially lifesaving value of participating in the PFF Care Center Network and the PFF Patient Registry – and will continue to rally around these programs." - PFF Patient Ambassador Taleena Koch

Medical centers are invited to apply to become a PFF Care Center Network site at www.pulmonaryfibrosis.org/CCN. For more information on the Pulmonary Fibrosis Foundation or to get involved, please visit www.pulmonaryfibrosis.org.


PFF Patient Registry and PFF CCN sponsorship

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