PFF PARTICIPATES IN CONGRESSIONAL BRIEFING ON PULMONARY FIBROSIS

Mar 4, 2015, 17:04 PM
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On February 25 the Pulmonary Fibrosis Foundation participated in a special congressional briefing on pulmonary fibrosis in Washington, DC, hosted by Representative Erik Paulsen, MN-3 and Representative Steve Cohen, TN-9. Senator Chris Murphy, D-CT, the US Food and Drug Administration (FDA), the National Lung & Blood Institute (NHLBI), National Institutes of Health (NIH), National Organization for Rare Diseases (NORD), and Pulmonary Fibrosis Advocates (PFA) also attended. The purpose of the briefing, held in conjunction with Rare Disease Day, was to inform Congress of the serious impact of pulmonary fibrosis on those affected and to call for more funding for research to find a cure for the deadly disease.

PFF Ambassador Doug Jones and PFA Advocate Director Paul Fogelberg, both PF patients, spoke to the group and shared their invaluable perspectives on living with the disease. Senator Murphy and Representative Cohen spoke about the need to increase the National Institutes of Health budget for research.
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