Minnesota Men Bring Fight Against Pulmonary Fibrosis to Washington
November 26, 2010 9:23 PM KSTP.com
By: Leah McLean
Bringing their Fight to Washington
To view the face to face interview; click here
Every year, 40,000 people die from breast cancer. Every year, Idiopathic Pulmonary Fibrosis kills the same number of people, yet many have never heard of it.
Two local men with IPF had never had heard of it until they were diagnosed. Now they are raising awareness and taking the fight against the disease to Capitol Hill.
Paul Fogelberg and Dan Estep are both fighting IPF. There is no cure and no known cause of this disease that attacks the lungs. Most people who get IPF die within five years.
Both men are using their passion and expertise to fight the deadly disease, not only for themselves, but those yet to be diagnosed. They are working to get a bill passed in Congress to get funding for research and a patient registry for IPF. Already both Minnesota senators and three other members of Congress have signed on to support to the bill, along with dozens of other lawmakers.
Fogelberg was just in Washington last week to meet with lawyers and lawmakers. He's hoping the upcoming congressional session will end with the Pulmonary Fibrosis Enhancement Act passed, possibly putting him one step closer to a cure.
For more information about the Pulmonary Fibrosis Enhancement Act and see how you can help; visit www.PulmonaryFibrosis.org/HR1079 or call our office at 888-733-6741