HR 1079: Pulmonary Fibrosis Research Enhancement Act

Dear Pulmonary Fibrosis Community,

As the House of Representatives nears its holiday recess we are requesting everyone to contact his or her congressman or woman to ask them to sign on as a Co-Sponsor of H.R. 1079.IH, The Pulmonary Fibrosis Research Enhancement Act.

The bill proposes to: “(1) develop a system to collect data on pulmonary fibrosis and other interstitial lung dis-eases; (2) establish the National PF (patient) Registry; and (3) establish the National Pulmonary Fibrosis Ad-visory Board.”
A complete summary of the bill can be found at:

HR 1079: Pulmonary Fibrosis Research Enhancement Act

There are presently 70 members of Congress from 30 states who have signed as co-sponsors of H.R. 1079. We estimate that a total of 100 members are required to get the required hearing in the House Energy and Commerce Committee before bringing the bill to the floor for passage. We have been told that if we can get 100 co-sponsors (only 38 more than we have now) it is extremely likely the bill will pass during the 2nd session of the 111th Congress in 2010.

A link to find the contact information for your local member of Congress is:

United States House of Representatives, 111th Congress, 1st Session

Often during the congressional recess you can make an appointment to see your member of Congress. You can also leave a telephone message, send an e-mail, or mail a letter.

Please visit Pulmonary Fibrosis Foundation for more information.

Finally, we would like to acknowledge the extremely hard work that Teresa Barnes, Mishka Michon, and Mark Shreve of the Coalition for Pulmonary Fibrosis have demonstrated over the last few years in bringing the leg-islation close to fruition. We believe that with your help we can get this landmark legislation passed.

Sincerely,

Daniel M. Rose