Latest News

RESEARCH NEWS
POSTED BY STEPHANIE SEWERYN ON 5/30/2012

DANVERS, MASS. (May 30, 2012) – A member of the Scleroderma Foundation’s Board of Directors has led a team of researchers who have identified a peptide that can block fibrosis of the skin and lungs, according to a report published today. “Lung fibrosis currently is the number one cause of death in patients with scleroderma,” said the report’s senior author Carol A. Feghali-Bostwick, Ph.D.

ADVOCACY
POSTED BY STEPHANIE SEWERYN ON 5/24/2012

Praises Senate for Addressing Needs of Rare Disease Patients

ADVOCACY
POSTED BY STEPHANIE SEWERYN ON 5/24/2012

By Robert Pear, New York Times

May 24,2012, WASHINGTON — The Senate on Thursday passed a major bipartisan bill to prevent drug shortages and to speed federal approval of new lifesaving medicines, including lower-cost generic versions of biotechnology products.

PFF NEWS
POSTED BY STEPHANIE SEWERYN ON 5/24/2012

Canadian Double-Lung Transplant Recipient Receives Diamond Jubilee Medal from Canadian Prime Minister Harper

PFF NEWS
POSTED BY STEPHANIE SEWERYN ON 5/14/2012

Foundation Announces Suite of Complementary Initiatives for Patients and Caregivers to Provide Enhanced Resources and Support

RESEARCH NEWS
POSTED BY STEPHANIE SEWERYN ON 5/10/2012

The medical schools of Stony Brook University and New York University have struck an agreement with a New Jersey pharmaceutical company to develop an experimental treatment for a fatal lung disease.

RESEARCH NEWS
POSTED BY STEPHANIE SEWERYN ON 5/4/2012

FibroGen Expands Clinical Study Based on Preliminary Data Indicating Improvement in Lung Function and Lung Fibrosis in Patients with IPF