Our Mission !

The Mission of the Pulmonary Fibrosis Foundation is to fund research which increases the understanding of and will find a cure for Pulmonary Fibrosis.  As part of our advocacy program, we petitioned congress to increase funding for the National Institutes of Health and have lobbied the NIH to make Pulmonary Fibrosis a major focus area. This has been achieved to a substantial degree but much more needs to be done. We will not rest until there are successful treatments available for Pulmonary Fibrosis. As a result of our advocacy program the NIH has established a National Network  for Clinical Research in Pulmonary Fibrosis. This effort involves eleven of the most prestigious research centers in the United States.

The medical community is deficient in its knowledge about Pulmonary Fibrosis. Most Internal Medicine specialists and even many Pulmonologists lack the diagnostic skills required to make an early and accurate diagnosis of Pulmonary Fibrosis. Proper diagnosis is the only hope for remediation for most sufferers. Therefore, we provide educational materials to Internists and Pulmonologists to correct this deficiency. 

We have been successful in getting some of the major drug companies to initiate new studies, which hopefully will find effective treatments for Pulmonary Fibrosis. We are partnering with them in the development of these pharmacological treatments. Finally, we work to educate the general public to increase awareness and understanding of this disorder.

In summary, we are working hard to improve the quality of life for Pulmonary Fibrosis sufferers. We provide hope, support, education, research, awareness and advocacy.

You can be an important part of this mission by making a financial contribution and by writing letters to others asking them to also do so. Working together as a team we will win this fight. We will find a cure!

 

 Last updated May 25, 2007