Find Medical Care

PFF Patient Communciation Center
Join Our Monthly eNewsletter
Subscribe to receive the most current news and updates from the Pulmonary Fibrosis Foundation.

Leanne Storch Support Group Fund

Leanne Storch Support Group Fund

Supporting Pulmonary Fibrosis Foundation support groups

Named for the Foundation’s former Executive Director, who was diagnosed with PF in 2003, the Leanne Storch Support Group Fund honors Leanne’s enduring passion for supporting those affected by pulmonary fibrosis. 

about the fund

The PFF is dedicated to assisting the all-volunteer pulmonary fibrosis (PF) support group community to engage their local PF patients, caregivers and family members, establish new support groups and host meaningful educational events. The Leanne Storch Support Group Fund enhances the PFF Support Group Leader Network by providing funding to assist the leaders in meeting the objectives of their local groups.

The Leanne Storch Support Group Fund was established in 2012 to further enhance the support group experience. A $500 grant was awarded to six groups in 2012, and 11 groups in 2013, 16 groups in 2014, and 45 groups in 2015.

Support group leaders can apply for the following types of grants:

  • $500 grant to establish a new pulmonary fibrosis support group
  • $750 grant to develop an existing pulmonary fibrosis support group to expand and extend their reach

Groups are limited to one grant per funding year. Support group leaders can request funds to cover expenses such as site rental fees, printing costs, refreshments, and other costs related to starting and/or running a quarterly or monthly PF support group.

View Guidelines

2016 Funding Cycle

The 2016 Leanne Storch Support Group Fund grant cycle is now open! If you have any questions or would like to inquire about starting a new PF support group, please contact the PFF Patient Communication Center at 844.TalkPFF or pcc@pulmonaryfibrosis.org.

Apply for a $500 New Support Group Award

Apply for a $750 Support Group Development Award

2015 LEANNE STORCH SUPPORT GROUP FUND AWARDEES

New Support Group Grants

Katharine Black, MD
​Boston Pulmonary Fibrosis Support Group
Boston, Massachusetts

Anthony Brehm, MD
Suffolk County Pulmonary Fibrosis Support Group
Stony Brook, New York

Nancy Brown, RRT
North Puget Sound PF Support Group
Everett, Washington

Michael Campos, MD
VA IPF Support Group
Miami, Florida

Jennifer Cannestra, RN
Spectrum Health PF Support Group
Grand Rapids, Michigan

Sophy Dedeopoulos, ANP-C
Advanced Lung Disease Support Group of Long Island
New Hyde Park, New York

Ronald Geoffrey, Sr.
Second Wind Foundation Breathe Easy Support Group
Hooksett, New Hampshire

Toni James
Southwest Louisiana PF Support Group
DeRidder, Louisiana

Rebecca Johnson
Hemet Pulmonary Fibrosis Support Group
Hemet, California

John Morthanos
Charlotte Hungerford Hospital PF Support Group
Torrington, Connecticut

Robert Mount
Hampton Road sPF Support Group
Norfolk, Virginia

Richard Norris
Metro East PF Support Group
Highland, Illinois

Terilla Richard
Lafayette PF Support Group
Lafayette, Louisiana

Laura Roix
New Britain PF Support Group
New Britain, Connecticut

Adrian Shifren, MD
St. Louis PF Support Group
St. Louis, Missouri    

Mandy Siavanthan, RN
UHN ILD Support Group
Toronto, Canada

Julie Smith, PA-C
St. Francis Sleep, Allergy & Lung IPF Support Group
Clearwater, Florida

Jennifer Wescoe
Wescoe Foundation for Pulmonary Fibrosis: PF Support Group
Easton, Pennsylvania

Support Group Development Grants

Carol Bair, RCP
Joe Walsh Memorial IPF Support Group
Denver, Colorado

Terri Jo Christenson
Portland PF Support Group
Portland, Oregon

Gary Cunningham
IPF Support Group of Sterling Heights
Sterling Heights, Michigan

Dot Delarosa and Anoop Nambiar, MD
San Antonio PF Support Group
San Antonio, Texas

Susan DiFabio, RRT, CPFT
PMHC IPF Support Group
Sleepy Hollow, New York

Dawnie Ellison, RT and Eugenia Sullivan-Moley, SC
Greater Kansas City PF Support Group
Kansas City, Missouri

Carolyn Fike
PF Support Group: Tucson, Arizona
Tucson, Arizona

Lori Flint, RN
The Quest for Breath University of Michigan IPF Support Group
Ann Arbor, Michigan

Maryluz Fuentes, MD
IPF Support Group of Montgomery
Montgomery, Alabama

Deborah Herndon
Idaho Pulmonary Fibrosis Support Group
Boise, Idaho

Susan Jacobs, RN, MS
Living with PF: Stanford Support Group
Stanford, California

Kathleen O. Lindell, PhD, RN
Simmons Center IPF Support Group
Pittsburgh, Pennsylvania

Margaret Lougee, RRT, CPFT
Better Breathers Club
Plymouth, Massachusetts

Barbara Murphy
Garden State Pulmonary Fibrosis Support Group
Morristown, New Jersey

John Myers and Fred Haley
PFF Piedmont Triad Support Group
Greensboro, North Carolina

David Naumann
PF Support Group of Minnesota
Minneapolis, Minnesota

Kristin Papu, PA-C
Yale IPF Support Group
Orange, Connecticut

Tamra Perez, RN
The Airbenders
Louisville, Kentucky

Michele Peters
Breakfast Club of IL PF Support Group
Elmhurst, Illinois

Julie Porcelli, BSN, RN
ILD Patient and Family Support Group
New York, New York

Silvia Smith, PhD
IPF Support Group of Utah
Salt Lake City, Utah

Angie Sohacki, CRT, CPFT
Valparaiso PF Support Group
Valparaiso, Indiana

Marcy Solmson
Atlanta/Austell PF Support Group
Atlanta, Georgia

Farah Stokes, RN
MUSC IPF Support Group
Charleston, South Carolina

Myrna Taylor
Eastern Idaho PF Support Group
Idaho Falls, Idaho

Rick and Diane Turner
Seattle PF Support Group
Seattle, Washington

Michelle Vega-Olivo, MSN, CRNP, FNP-BC
Temple Lung Center PF Support Group
Philadelphia, Pennsylvania

2014 leanne storch support group fund awardees

Magdalena Pacheco
​Inland Empire Pulmonary Fibrosis Support Group
Fontana, California

Jeffery Peters
​Breakfast Club Pulmonary Fibrosis Support Group
Elmhurst, Illinois

Belica Graf, RRT
​The University of Louisville Pulmonary Fibrosis Support Group
Louisville, Kentucky

John W. Dominguez
​IPF Support Group of The Berkshires
Pittsfield, Massachusetts

Deborah Dahlgren, RN
​Michigan IPF Support Group
Ann Arbor, Michigan

Gary Cunningham
​Pulmonary Fibrosis Support Group
Sterling Heights, Michigan

David Naumann
​Pulmonary Fibrosis Support Group of Minnesota
Minneapolis, Minnesota

Dawnie Ellison, CRT and Eugenia Sullivan-Moley, SC
The Greater Kansas City Pulmonary Fibrosis Support Group
Kansas City, Missouri

Grace Trimmer, RN, MSN
Winthrop University Pulmonary Fibrosis Support Group
Mineola, New York

Julie Porcelli, BSN, RN
New York Presbyterian ILD Patient and Family Support Group
New York City, New York

Susan DiFabio, RT
Phelps Memorial Hospital Center’s Pulmonary Fibrosis Support Group
Sleepy Hollow, New York

Kathleen O. Lindell, PhD, RN
Simmons Center for ILD IPF Support Group
Pittsburgh, Pennsylvania

Cindi J. Brannum
Dallas/Fort Worth Breathe Support Group
Dallas, Texas

Dot Delarosa and Anoop Nambiar, MD
San Antonio Pulmonary Fibrosis Support Group
San Antonio, Texas

Jane Harrison, LCSW, CCTSW
IPF Support Group of Greater Washington, D.C.
Falls Church, Virginia

Russell Glover
Breath Matters Support Group
Richmond, Virginia

2013 Leanne Storch Support Group Fund Awardees

Piedmont Atlanta Hospital’s Pulmonary Fibrosis Support Group
Atlanta, Georgia
Program: Global Pulmonary Fibrosis Awareness Day Symposium in 2014
Awarded to Support Group Leaders: Dionne Blasingame, PhD, RRT and Marcy Solmson

IPF Support Group of the Berkshires
Pittsfield, Massachusetts
Program: 2014 Monthly Support Group Meetings
Awarded to Support Group Leader: John Dominguez

Calgary Pulmonary Fibrosis Support Group
Calgary, Alberta
Program: 2014 Monthly Support Group Meetings
Awarded to Support Group Leader: Kirk J. Mathison, RN

Minnesota Pulmonary Fibrosis Support Group 
Minneapolis, Minnesota
Program: 2014 Monthly Support Group Meetings
Awarded to Support Group Leader: David Naumann

Middle Tennessee Idiopathic Pulmonary Fibrosis Support Group
Nashville, Tennessee
Program: 2014 Support Group Meetings
Awarded to Support Group Leader: Wendi Mason, NP

New York Presbyterian ILD Support Group
New York, New York
Program: 2014 Support Group Meetings
Awarded to Support Group Leader: Julie Porcelli, BSN, RN

Simmons Center IPF Support Group
Pittsburgh, Pennsylvania
Program: “Dealing with the Impact of IPF & Moving Forward” meeting November 2013
Awarded to Support Group Leader: Kathleen Lindell, PhD, RN

Central Valley Pulmonary Fibrosis Support Group
Sacramento, California
Program: 2014 Support Group Meetings
Awarded to Support Group Leaders: Maya Juarez, Oanh Nguyen, and Carolyn King

Stanford University Medical Center, Living with Pulmonary Fibrosis Support Group
Stanford, California
Program: 2014 Support Group Meetings
Awarded to Support Group leader: Susan Jacobs, RN, MS

Pulmonary Fibrosis Foundation Support Group
Elmhurst, Illinois
Program: 2014 Monthly Support Group Meetings
Awarded to Support Group Leader: Nancy Neil

Breath Matters Support Group
Richmond, Virginia
Program: 2014 Monthly Support Group Meetings
Awarded to Support Group Leader: Russell Glover

2012 Leanne Storch Support Group Fund Awardees

University of Pittsburgh Dorothy P. & Richard P. Simmons Center for Interstitial Lung Disease at UPMC Support Group
“Stem Cell Research & IPF” meeting on November 5, 2012
Awarded to Support Group Leader: Dr. Kathleen Lindell

Eastern Idaho Pulmonary Fibrosis Support Group
Eastern Idaho Regional Medical Center
2012 and 2013 Support Group Meetings & Newsletters
Awarded to Support Group Leader: Myrna Taylor

Minnesota Pulmonary Fibrosis Support Group in conjunction with The University of Minnesota
Pulmonary Fibrosis Patient Education Day October 6, 2012
Awarded to: Dr. Hyan Kim and Mel Bors, RN, BSN, MA Care Coordinator ILD, Paul Fogelberg

IPF Support Group of Montgomery
Baptist Medical Center South
“Acute Respiratory Failure, Mechanical Ventilation, and ICU Admission: The Implications” March 2013 meeting
Awarded to Support Group Leader: Dr. Maryluz Fuentes

Edwards Hospital Pulmonary Fibrosis Support Group
Edwards Hospital, Naperville, IL
“Massage Therapy and Nutrition for Pulmonary Fibrosis Patients” meeting
Awarded to Support Group Leader: Donna Serlin, RRT

Pulmonary Fibrosis Support Group in San Antonio
Church Triumphant Church Hall, San Antonio, TX
2012 and 2013 Support Group Meetings
Awarded to: Dr. Anoop Nambiar

Footer_Ad_TeamPFF

footer_txt_bblBook a PFF Ambassador for your event.   Call 844.TalkPFF >