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Support Groups Online Support Groups The
Pulmonary Fibrosis Foundation's only authorized online support group may
be accessed by A caregiver's online support group has been created. http://health.groups.yahoo.com/group/Breathe-SupportCaregivers/ This group is for people who take care of and support the people who have pulmonary fibrosis. If your loved one passed away from pulmonary fibrosis and you would like to "talk" to someone, you can connect with people on this newly created board: http://health.groups.yahoo.com/group/Breathe-SupportGrief/.
Chicago and Suburbs, IL The Breakfast Club, Pulmonary Fibrosis Support Group Meetings: 4th Saturday of the month - 10:00 AM Location: Different Restaurants Contact: Leanne Storch 312-587-9272 (office) or 773-237-9885 (home) RSVP, please This meeting is open to Pulmonary Fibrosis patients and their families and friends.
Hinsdale, IL Better Breather's Club Meetings: 3rd Thursday of the month - 1:00 pm - 2:30 pm Location: RML Specialty Hospital, 5601 S. County Line Road, Hinsdale, IL Contact: Phyllis Samplawski, LCSW 630-286-4532 - Please pre-register for meeting
Joliet, IL Pulmonary Support Group Meetings: 2nd Thursday of the month - 10:00 am - 11:00 am Location: Silver Cross Hospital, Specialty Care Pavilion, 1300 Copperfield Avenue Call: 888-660-4325 This support group is for individuals with pulmonary fibrosis, sarcoidosis, emphysema, chronic bronchitis, COPD & adult asthma
Naperville, IL Pulmonary
Fibrosis Support Group Location:
Edward Hospital, 801 S. Washington Street, Naperville, IL
Sacramento
, Meetings: 3rd Monday of the month (call for confirmation) 1:30 - 3:30 PM Contact information: Sandra Rock (916) 354-1324
Victorville, CA Pulmonary Fibrosis Support Group Location: Charitable Foundation 16716 Bear Valley Road Meetings: 1st Wednesday of every month, 3:00 - 4:30 PM Contact information: Steve Clemmons (760) 246-7711 or Teresa Hackett (760) 956-8817
Pulmonary Fibrosis support group Location: National Jewish Medical and Research Center 1400 Jackson Street, Denver Meetings: Every other month Contact information: Carol Bair, RCP, (800) 423-8891 x 1621
Fort Myers, FL Pulmonary Fibrosis support group Location: HealthPark Medical Center, Room 2A 9470 HealthPark Circle, South Ft. Myer Meetings: Second Friday of the month - 1:00 PM Contact information: Marge (239) 481-0582 or Dana (239) 335-7720 West Palm Beach, FLAmerican
Lung Association of SE Florida PF Support Groups/Lectures Location: Good Samaritan Medical Center, 1309 N. Flagler Drive, Teleconference room Meeting: Times Vary Contact information: Mary Shields (561) 659-7644 (please call for reservations)
Hammond, IN Pulmonary Fibrosis support group Location: Johnel's Restaurant, 4145 Calumet Avenue, Phone: (219) 931-7000 Meeting: 2nd Saturday of the month, 9:00 AM Contact Information: Gordon Beck (773) 734-2743
Vincennes, IN Pulmonary Fibrosis support group - Living with IPF Location:
Good Samaritan Hospital Meetings: Third Tuesday of every month, 7:00 - 8:30 PM Contact information: Trudy: (812) 886-8753
Pittsfield,
MA Private
Dining Room B Ground Floor or cfezzie1@berkshire.rr.com for meeting dates and times
Baltimore, MD Bay Bridge Breathers Harbor Hospital's LifeResource Center 2990 S. Hanover St. Meetings: Monday - noon For those with emphysema, chronic bronchitis and pulmonary fibrosis. Contact: 410-350-8255 for specific meeting dates
Ann Arbor, MI Contact: Emily Chartow at: 734-998-7012 Email: echartow@umich.edu
Sterling Heights, MI
Support Group Meetings: 2nd Tuesday of each month: 1:00 to 3:00 PM Contact: Darlene S. Watkins, RRT 586-573-5763 Email: darlene.watkins@stjohn.org
Morristown, NJ North\Central
Jersey PF Support Group Meetings: Last Wednesday of every month, 7:00 PM Contact information: Barbara Murphy - bjmurphy21@comcast.net
Sleepy Hollow, NY Pulmonary Fibrosis Support Group Location: Phelps Memorial Hospital, 701 N. Broadway - Pulmonary Gym Meetings: Thursday - 12:30PM - 1st meeting June 1, 2006 Contact information: Susan DiFabio - 914-366-3712
Tulsa,
OK
IPF
Support Group Location:
St. John Health Plaza 1819
East 19th Street, 1st Floor Meetings:
3rd Saturday during March, May, July, September and
November Contact information: Leon Simmons, ipftulsa@tulsaconnect.com
Spirited Breathers support group for PF patients & families Location: Sacred Heart Medical Center, Oregon Heart Center conference room 1255 Hilyard Street, Eugene Meetings: Second Thursday of the month, quarterly meetings 3:00 - 4:30 PM Contact
information: Susan:
(541) 686-7442
Tualatin, OR Pulmonary Fibrosis Support Group Location: Legacy Meridian Park Hospital, Community Health Educational Building 19300 SW 65th Avenue Meetings: 1st Thursday of the month, 3:00 - 4:30 PM Contact information: Karen Saveride: (503) 692-2158
Pittsburgh, PA IPF support group Location:
UPMC Presbyterian Conference Room 1102, 11th floor Meetings: First Monday of every other month excluding January, July and August, 1:00 - 3:00 PM Contact
information: (412)
802-3275, sirnmonslLD@msx.uprnc.edu
Nashville, TN Middle
Tennessee Support Group Meetings: Second Monday of the month, (July's meeting will be the third Monday) 12:00 noon Speakers will provide educational information and lunch is usually provided Contact: Wendi - (615) 322-2386 Website: www.mc.vanderbilt.edu/root/vumc.php?site=ipfcenter
Houston, TXPulmonary
Fibrosis support group Location:
Kelsey Seybold Main Campus 2727
W. Holcombe Boulevard, 2nd Floor imaging conference room, Houston Meetings: Every third Saturday, every other month. Contact information: Jan Orndorff: (281) 348-2378 (281) 844-5300 (cell) or Jan3145@aol.com
Falls Church, VA Location: Inova Fairfax Hospital, 3300 Gallows Road, Conference Center, Room 5 Meetings: Varies Contact information: Jane Harrison: (703) 776-3203, jane.harrison@inova.com
Everett, WA Pulmonary Fibrosis Support Group - Lung Rangers Location: Medical Office Building -1330 Rockefeller - Rainer Room - Ground Floor Meetings: Third Tuesday of the month, 4:00 - 5:30 PM For information call: (425) 261-3780
Seattle, WA Pulmonary Fibrosis support group (in existence for 15 years!) Location: American Lung Association of Washington 2525 Third Avenue (downtown Seattle between Cedar and Vine) Meetings: Second Tuesday of every month (except July-August), 1:00 - 3:00 PM Contact
information: (206)
441-5100
.
North
Staffordshire, UK --
FIRST BREATH OF LIFE FOR CHEST ILLNESS GROUP Additional Support Groups If you know of any additional support groups that are not listed above or would like to participate in the formation of a new group, please email: breathe@pulmonaryfibrosis.org Pulmonary
Fibrosis Foundation Last updated February 21, 2007
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