20th Annual Father's Day Road Race

  • Dates: 15 Jun, 2014
  • Location: North Easton, Massachusetts, United States of America
  • How to find us: The Children's Museum in Easton - 9 Sullivan Street

Our family first heard the term “idiopathic pulmonary fibrosis” (IPF) about seven years ago, when my dad’s brother, Tim, was diagnosed. What we learned about the disease was not encouraging. We were told that IPF was progressive and terminal and that most people live only 3 to 5 years after diagnosis.

Despite this bleak prognosis, Tim managed to defy the odds. Until about a month ago, he lived with only minor complications from the disease. But in the meantime, other members of our family were also diagnosed with IPF. Among them is my dad, Michael, who discovered he has IPF after a bout with pneumonia in 2013.

My dad and my uncle Tim are under the care of a fantastic group of researchers and physicians at Yale New Haven Hospital, led by Dr. Erica Herzog. Dr. Herzog’s group works tirelessly day and night to find a successful treatment for IPF and to discover what causes this complex, devastating disease.

Even with the truly herculean efforts of researchers like Dr. Herzog and others across the country, there is still no cure for IPF, nor is there any explanation for why it is not uncommon for it to strike multiple times in the same family. (10-15 percent of IPF patients have a familial form of the disease.)

When we asked Dr. Herzog what we could do to help, she encouraged us to support the Pulmonary Fibrosis Foundation (PFF). Therefore, we’ve put together this fundraising page to raise money for the PFF, whose mission is to help find a cure for IPF, advocate for the pulmonary fibrosis community, promote disease awareness, and provide a compassionate environment for patients and their families.

On June 15, 2014, a team of runners and walkers will participate in the 20th Annual Father’s Day Road Race in Easton, MA to raise awareness about IPF and the great work of the Pulmonary Fibrosis Foundation. Thank you for considering making a contribution to our team, which we proudly call "Team Cure IPF!." All money raised goes directly to support vital research and care for patients dealing with the disease. Every little bit helps and we are so grateful for your generosity!

With appreciation,

Erin Salius and Team Cure IPF

 

To learn more or support the 20th Annual Father's Day Road Race in honor of Michael Salius, please visit their First Giving page.

 

 

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