Share Your Story


We welcome patients, caregivers, transplant recipients, those who have lost a loved one, and healthcare professionals to share their stories with the pulmonary fibrosis (PF) community

Our goal is to help others understand the impact of PF and engage with individuals who may be interested in joining our efforts. We hope to share as many stories as possible year round through social media.

If you are interested in sharing your story, please answer the questions listed below, and email your responses to Please note that due to a large quantity of submissions, we cannot guarantee that all stories will be posted online.

Please include the following details:

  • Name
  • Age
  • Where You Live
  • Who Has/Had PF
  • Date of Diagnosis
  • Symptoms Leading to Diagnosis
  • Description of Journey Since PF Diagnosis
  • 1-2 Photos

Please answer only one of the following questions:

  • Share a moment of kindness that moved you during this journey. Perhaps someone showed compassion or kindness when you needed it most.
  • What is the one truth you would like to tell other about your experience with pulmonary fibrosis?
  • How has your life changed since learning of this diagnosis?
  • Have there been any good changes in your life since learning of this diagnosis?
  • Is there something you or your loved one aren't able to do since learning of this diagnosis that makes living with I/PF more challenging than people realize?
  • Moving forward, how do you plan to remain engaged with the pulmonary fibrosis community?
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