Dr. Rosenzweig & Associates

The Foundation functions as an advocacy organization to influence the decision-makers in Washington to increase funding for research to 
find effective treatments for pulmonary fibrosis. 

In partnership with other organizations, we have successfully convinced Congress to double the research budget of The National Institutes 
of Health. However, we continue to lobby the NIH to make pulmonary fibrosis a major area of focus. As a result of our efforts the NIH has 
established a National Network for Clinical Research into the causes and treatments for Pulmonary Fibrosis. There are now eleven research 
centers investigating Pulmonary Fibrosis. The cost of the network is more than $15,000,000.00. We also are targeting the major drug 
companies to facilitate the development of new pharmacological treatments for Pulmonary Fibrosis. Do to our pressure on them there are 
six new drugs being tested.

The biggest problem of Pulmonary Fibrosis patients is our invisibility. We are largely unseen victims of a disease that most people have never 
heard about. What is worse, the medical community is at a loss to deal with our condition. Diagnosis is haphazard and treatments ineffective. 
Our condition is often misdiagnosed as asthma, emphysema or one of the many forms of pneumonia.  

 Rep. Mark Kirk & Dr. Rosenzweig

 Dr. Rosenzweig & Sen. Trent Lott

How do we solve this problem? - -  Advocacy!

What is advocacy ?

Advocacy involves letting the world know that we exist and that we deserve the best medical care available. It means writing letters to your local newspapers telling the editors to print articles about Pulmonary Fibrosis. It means calling the radio and TV stations asking them to put out public service announcements about Pulmonary Fibrosis. It means contacting your representatives in congress letting them know that we want increased appropriations for medical research on Pulmonary Fibrosis. It means talking to everyone you know and asking them to help promote awareness of  our disease. policy makers

If we do nothing, we will continue to watch our husbands, wives, mothers, fathers, brothers, sisters, grandparents, aunts, uncles and ourselves slowly deteriorate until death seems like a welcome alternative. All problems have solutions if we are willing to put sufficient time and effort into finding them.  

Medical science will find a cure for Pulmonary Fibrosis if sufficient  funds and energies are put into the search. The National Institutes of Health is allocating $2,800,000,000 dollars for medical research this year. We must insist that Pulmonary Fibrosis research receives its fair share of those funds.

Dr. Rosenzweig & Sen. Jay Rockefeller

What can you do ?

• Send a press release to your local paper. (click here for sample release)

• Call your TV and radio stations asking them to put on public service announcements. They are required by law to do so free of charge. (click here for sample PSA)

• Make a donation to help us continue our efforts to "influence the powers that be" to increase research funding for Pulmonary Fibrosis so we can find a cure.

• Call or write your Representatives and Senators stating that you wish them to increase funding for lung research.
  ( click here for sample letter

Mayor Richard Daley & Dr. Rosenzweig

Sen. Arlen Specter &  Dr.Rosenzweig

    For a list of members of the House of Representatives and their addresses - click here

    For a list of members of the Senate and their addresses - click here

    For a list of bills pending and the congressional record - click here

The photos at the left represent just a sample of the efforts the foundation has made to influence the policy makers on the importance of Pulmonary Fibrosis Research.

Latest update May 30, 2007