Start a Fundraiser

We appreciate your desire and interest to fundraise for the Pulmonary Fibrosis Foundation. Without your support, the Foundation would not be able to carry out its mission. We have some guidelines that explain further our role and involvement as well as what information is appropriate to use. These are intended to support your endeavor to raise funds for the Foundation.

View more information on fundraising online and personal fundraising pages.

For more information please contact:
Cara Schillinger, Associate Vice President of Communications and Marketing
events@pulmonaryfibrosis.org

Planning

If the Foundation’s name is to be used in the event, please inform the staff as soon as possible. This gives us the opportunity to share the planning experiences and allow others in the Pulmonary Fibrosis community to be involved. The Foundation should also be informed of any corporations, businesses, or celebrities who may be approached to underwrite an event.

Funding

Event planners should try to have the cost of the event underwritten by sponsors solicited by the event organizer. Prior commitment is needed in order to reimburse a volunteer. Attendees should make checks payable to the Pulmonary Fibrosis Foundation and the volunteer is then responsible for forwarding the proceeds to the Foundation. We will provide you with a copy of our 501(c)3 or other legal information.

Communications

Any advertisements, mailings, and press releases, etc., using the Pulmonary Fibrosis Foundation’s name should be reviewed by the Foundation and approved prior to any distribution.

Publicity

Fundraising events serve as an excellent opportunity to raise awareness of Pulmonary Fibrosis. A Foundation representative can provide accurate information regarding the disease and the mission of the Foundation.

Tax Deduction Eligibility

The Foundation holds a 501(c)3 IRS tax exempt status. You are encouraged to provide participants with a receipt for contributions. Through the DonorDrive System, donors will immediately receive a thank you email and letter for their donations to use for tax purposes. If the donations are in check or cash form the Foundation will send thank-you letters to each donor provided the event organizer has given a list of names and addresses with the proceeds from the event.

Solicitations and Raffles

In order to obtain sponsors, raffle or silent auction items, many companies will require proof of the Foundation’s non-profit status and/or a letter from the Foundation requesting the item. We can provide the appropriate information required based on the company’s solicitation policy.

Permits/Insurance

The event organizer is responsible for permits and/or insurance coverage, if required. Follow any legal requirements needed.

Sending Proceeds

Event proceeds should be submitted to the Foundation within one month of event completion. You can either send one check covering the amount or ensure each of the guest’s donation checks are made payable to the Pulmonary Fibrosis Foundation. If you decide to send one check for the proceeds, please include a list of names and addresses of the attendees or participants and amount contributed. The Foundation will send each of your guests a thank-you letter for their generous contribution.