Annual Report and Form 990
Dear Pulmonary Fibrosis Community,
As the Pulmonary Fibrosis Foundation (PFF) finishes its first ten years, we look forward to implementing an ambitious agenda for our next decade.
The Pulmonary Fibrosis Foundation was founded by two men, my father Albert Rose and his brother Mike Rosenzweig, who watched their sister Claire die from the disease. They worked tirelessly to build the Foundation and make it financially viable. The support network for those with the disease grew and the Foundation became a beacon for those afflicted with this deadly disease and their caregivers.
In our first decade, some of our achievements include funding nearly $3 million in research grants and assisting in the development of the Interstitial Lung Disease (ILD) Center at the University of Chicago.
This year has been a pivotal one for the Foundation. We generated congressional support for the Pulmonary Fibrosis Research Enhancement Act (PFREA). The legislation directs the CDC to create a national PF registry. This will provide critical demographic and epidemiological information. The Foundation is also developing a pilot registry at four collaborating institutions.
Additionally, we increased fundraising events to 43, totaling a record $300,000 in 2010. We updated our website to serve our constituency more effectively, and we sponsored three patient education webinars.
We took a significant step forward with the appointment of Patti Tuomey, Ed.D., as our Chief Operating Officer. Patti is extremely accomplished and has extensive experience working in the non-profit community. Her leadership is helping the Foundation expand its infrastructure and set the course for our second decade.
In the coming year we have an ambitious agenda for growth: holding an international healthcare conference on idiopathic pulmonary fibrosis in Chicago in December; establishing eight regional affiliate groups; and expanding our annual giving program in order to fund critical research.
Through your support, we have established a remarkable record of achievement in just ten years. We are excited about the challenges and accomplishments ahead that will help us realize our mission to find a cure.
Sincerely,
Daniel M. Rose, MD
President and Chief Executive Officer
Pulmonary Fibrosis Foundation
View Dr. Rose's 2012 President's Letter
Other Documents:
Please contact info@pulmonaryfibrosis.org or 888.733.6741 if you would like additional information on pulmonary fibrosis or the Pulmonary Fibrosis Foundation.
