Patient Resources

The PFF Community

Resources for Patients and Families

While our staff is always available to discuss the individual needs in person, and we strongly encourage you to contact us directly to learn how we can help you, we do strive to provide as much online education and information as possible.

In this section are several options that may be of interest to you based on you individual circumstances.

Lung Transplantation - Many patients are in need of more information on the role of lung transplantation in the treatment of pulmonary fibrosis. We provide more detailed information about lung transplantation here.

Regional Affiliates - Find out if there is a PFF affiliate group in your area, and information on how you could start an affiliate group if there is none in your area

FAQ- A general guide to frequently asked questions about your condition to help you understand the basics of pulmonary fibrosis

Webinars & Podcasts – An online archive of recent educational webinars sponsored by the Pulmonary Fibrosis Foundation, and in the future, podcasts, that will keep you informed about the latest education and research activities.

Helpful Links - there are many organizations and Web sites that may be of particular interest to you, whether you are seeking information on programs and services for patients, clinical trials, or seeking a medical center in your area for care. You can click here to find a variety of online resources that may help you or your family.

Patient Support – Links to support groups that meet in person throughout the country as well as links to online support groups that are endorsed by the Pulmonary Fibrosis Foundation. We have seen tremendous growth in online support recently, and many patients now find this to be a much more immediate way to find others with PF, and share concerns, questions and personal challenges with PF within a community of other patients.