Online Support Groups

FOR PATIENTS
Pulmonary fibrosis patient's online support group, moderated by the Foundation:
http://health.groups.yahoo.com/group/Breathe-Support/

FOR CAREGIVERS
A caregiver's online support group is also available: http://health.groups.yahoo.com/group/Breathe-SupportCaregivers/

LUNG TRANSPLANT
Lung transplant. Should I or shouldn't I? Check out our online support group for Lung Transplant patients before and after. This forum will be for people trying to decide whether or not to have a transplant but also for people who have had a transplant and can share their story with those who are waiting or deciding.
http://health.groups.yahoo.com/group/Breathe-SupportLungTransplant/.

GRIEF & LOSS
If your loved one passed away from pulmonary fibrosis and you would like to "talk" to someone, you can connect with people on our grief board: http://health.groups.yahoo.com/group/Breathe-SupportGrief/

UNITED KINGDOM
UK on-line support groups providing support and information for people suffering from pulmonary fibrosis primarily in the UK but anyone can participate. This site is for patients, carers and people who have lost a loved one to pulmonary fibrosis: http://health.groups.yahoo.com/group/pulmonaryfibrosis
www.pulmonaryfibrosis.org.uk

INDIA
India on-line support group providing support to patients and their families in India who are dealing with pulmonary fibrosis: http://health.groups.yahoo.com/group/PF_Support_Group_India

Forums and Public Areas Disclaimer
If you use an on-line support group (the Forums and Public Areas) on or available through the PFF site, you are solely responsible for your own communications, the consequences of posting those communications, and your reliance on any communications found in such Forums and Public Areas. In using such Forums and Public Areas, you agree to the following Terms and Conditions of Use:

(a) You represent and warrant that you are at least 18 years of age and that you will not permit the posting questions or comments by persons under 18 years of age without the consent of their parents.

(b) You agree that you will not upload, post, transmit, distribute or otherwise publish on PFF's website [or in its on-line sponsored support groups] any information or materials which:

  1. restrict or inhibit other Users from using the or enjoying PFF's website or the Forums and Public Areas or which, in the judgment of PFF, exposes PFF or any of its vendors, partners or suppliers to any liability or detriment of any type;
  2. are unlawful, obscene, derogatory, defamatory, threatening, harassing, abusive, slanderous, hateful, or embarrassing to any other person or entity as determined by PFF in its sole discretion;
  3. names, e-mail addresses, telephone numbers or any other confidential or personally identifiable information of yourself or any person(s) or entities;
  4. posting material that infringes on the copyrights or other intellectual property rights of others or on the privacy or publicity rights of others or using the website for any purpose violation of local, state, federal, or international laws;
  5. posting advertisements or solicitations of business or posting links to other websites or individuals, without prior written permission from PFF and the persons or websites in question;
  6. posting chain letters or pyramid schemes;
  7. impersonating another person or entity, registering under more than one name and/or e-mail address or allowing any other person or entity to use your identification for posting or viewing comments;
  8. distributing viruses or other harmful computer code;
  9. posting the same note more than once, violating the CAN-SPAM Act or otherwise engaging in any activity that would amount to "spamming"; or
  10. after receiving a warning, continuing to disrupt the normal flow of dialogue, or posting comments that are not related to the topic being discussed (unless it is clear the discussion is free-form).

(c) You agree that you will not upload or transmit any communications or content of any type that infringes upon or violates any rights of any party. By submitting communications or content to any part the PFF website, you agree that such submission is non-confidential for all purposes.