PATIENT STORIES
POSTED BY MATT DERDA ON 9/2/2010
Written by Cynthia Demos
(CBS4) There's a disease that strikes people who are otherwise perfectly healthy and slowly robs them of their ability to breathe.
"When you get diagnosed with this, that's a death sentence," said 71-year-old Bob O'Rourke who is fighting for his life.
O' Rourke has Pulmonary Fibrosis (PF), a lung ailment which is slowly robbing his ability to breathe.
MEDICAL NEWS
POSTED BY MATT DERDA ON 8/31/2010
Stromedix, Inc., a biotechnology company focused on innovative therapies for fibrosis and fibrotic organ failure, announced today that its lead clinical candidate STX-100 has been granted orphan drug status by the U.S.
NEWS STORY
POSTED BY MATT DERDA ON 8/30/2010
Four Investigators Each Awarded $100,000, Two year grants
CHICAGO, Aug.
PATIENT STORIES
POSTED BY MATT DERDA ON 8/30/2010
By Bronwyn Turner
GALVESTON — Cheryl Roy was a busy Ball High School teacher when shortness of breath sent her to the doctor in 2004.
“My symptoms were mild, and it did not affect my life,” the mother of two said.
Four years and a lung biopsy later, Roy would be diagnosed with a mysterious lung disease, one without treatment or cure.
Early this year, her condition worsened, bringing th
NEWS STORY
POSTED BY MATT DERDA ON 8/25/2010
NEW STORY
POSTED BY MONICA STORCH ON 8/25/2010
by Joe Palca
Robert O'Rourke has idiopathic pulmonary fibrosis, and he wants the world to know about it.
MEDICAL NEWS
POSTED BY MATT DERDA ON 8/24/2010
By GARDINER HARRIS
Published: August 23, 2010
WASHINGTON — A federal district judge on Monday blocked President Obama’s 2009 executive order that expanded embryonic stem cell research, saying it violated a ban on federal money being used to destroy embryos.
NEWS STORY
POSTED BY MATT DERDA ON 8/19/2010
PFF Call on Patients, Families, and Supporters to Contact Congress and Urge Support for S. 3703 and H.R. 1079
CHICAGO, Aug. 19 /PRNewswire-USNewswire/ -- The Pulmonary Fibrosis Foundation (PFF) today expressed its support for the 2010 National Pulmonary Fibrosis Awareness Week activities, to be held from September 11-18, 2010 in Washington D.C.
BREAKTHROUGHS
POSTED BY MATT DERDA ON 8/16/2010
Legislation sets up advisory board, patient registry
Contact: Susan Wheeler
Wednesday, August 4, 2010
Washington, DC – Legislation introduced today in the U.S. Senate would bring much-needed attention to a progressive and generally fatal disease that takes the lives of 40,000 people each year.
BREAKTHROUGHS
POSTED BY MATT DERDA ON 8/4/2010
M. President, I am pleased to introduce the Pulmonary Fibrosis Research Enhancement Act. Even though pulmonary fibrosis, or PF, kills almost as many people as breast cancer every year, it has not received the attention it deserves.
Imagine being told by a doctor that you have a life-threatening disease with no known cure, no consistent standard of care, and no reliable prognosis.
